May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
[ read more ]
May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
[ read more ]
May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
[ read more ]
FDA approves Benlysta to treat lupus First new lupus drug approved in 56 years The U.S. Food and Drug Administration today approved Benlysta (belimumab) to treat patients with active, autoantibody-positive lupus (systemic lupus erythematosus) who are receiving standard therapy, includi
[ read more ]
I truly believe laughter is the best medicine…well as far as free medicines go. I totally have a lunch sack full of pills that can give generic laughter a good ol’ fashioned run for its money, but nothing beats a laugh. I’m not talking about the quiet snickers with your hand over your mout
[ read more ]
Disability. Disability is an evil, nasty word that many people cringe at, because it means that you may not be able to do something you possibly once loved, either at all, or possibly unassisted. For me, it took a decade to emotionally and mentally accept that I’m partially disabled. Only a mon
[ read more ]
Recently, one of my doctors asked me how my many health issues affect my every day life? The first two words to pop into my head? “All encompassing.” And it’s true. My health issues affect almost every decision I make each day: what am I going to wear today, dress for comfort, hair in a pony t
[ read more ]
As a patient living with lupus, I must say that the various flavors of symptoms is often the hardest to cope with. Every month I experience something completely new that leaves my doctors gaping in disbelief as to whether I'm making it all up. As if! The latest offender has been my scalp. Whene
[ read more ]
Pillboxie is new application (app) that offers a simple way to remember to take your medications. The design is clean and user friendly, something I’ve found lacking in a lot of otherwise useful apps. Jared Sinclair, RN, developed Pillboxie. Sinclair seems to genuinely care about people and is ver
[ read more ]
1. They know each others' favorite hospital meal 2. The smell of disinfectant becomes a turn on 3. They exchange bodily fluids by dumping each other's urine containers 4. Gripper socks become part of the lingerie wardrobe 5. The only jealousy had is of IV-friendly veins 6.
[ read more ]
I had never run so fast in my life. Even interval treadmill running to the motivating sounds of Guns n’ Roses in my ears couldn’t compare to chasing my 3 year old son across the entire length of the park. I was in a full out sprint, my feet barely hitting the ground before moving to make roo
[ read more ]
Nearly everyone carries a cell phone and while for some it’s just something they use everyday, for me it has been my sanity saver. My husband surprised me with an Android Epic two weeks after my shoulder surgery and I will never go back to another kind of phone. Since we use Sprint the Epic came t
[ read more ]
I am a hair accessory addict. I own every kind of hair accessory. When I was younger, I swore I would always leave the house looking “presentable”. I would not just throw my hair in a pony tail. Not that there’s anything wrong with a well-coiffed pony tail, but they were not for me. The
[ read more ]
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
