Please Don't Ask My Dad About Lupus! The Answer Might Involve Jello.

Please Don’t Ask My Dad About Lupus! The Answer Might Involve Jello.

If you ask my dad about Lupus he will give you a very seemingly odd answer.  He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string.  It's one

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May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?

May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?

Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with

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Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad.

We have all heard the dreaded saying "But you don't look sick?" But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, hair done, and full

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I am Sick, NOT Stupid.

I am Sick, NOT Stupid.

Many years ago I heard a joke that was going around and it went like this. A guy was going home from the auto mechanic and just as he was passing a psychiatric center, a wheel fell off his car. He stopped, surveyed the situation and realized that the mechanic must have been distracted and never p

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No Rhyme or Reason. I have done all I can do.

No Rhyme or Reason. I have done all I can do.

What to do when you have done everything, and still feel like crap. There are days when I feel really crappy. Maybe I didn’t take my meds on time or I overdid the day before. What I really hate is when I seem to have done everything right and I still feel so wrong. The other day the weather was

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30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know

Many prominent bloggers were asked to participate in this simple blog post meme to help spread awareness during Invisible Awareness Week (September 11-18th) I think it is important to participate in these things because as much as this website, my speaking and writing have brought me into the public

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The Death of a Dancer - Who am I?

The Death of a Dancer – Who am I?

I was born a dancer. Well, I guess I was born a little girl who liked to move then I became a dancer. As a baby, music soothed me and I loved to wiggle and move. My mother remembers me spinning and twirling around the house to any music that was playing on the radio. When I didn’t have music, I wo

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My Roulette Kinda Life. You Just Never Know.

My Roulette Kinda Life. You Just Never Know.

I remember going to the bright lights of Atlantic City and watching people play roulette. I would just walk around and watch people. I liked to watch the “high rollers” because they seemed so carefree with amounts of money that would make me sick, if I lost. For a moment, I would love to be able

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Christine Miserandino featured in Johnson & Johnson's first Lupus video on their dedicated YouTube health channel!

Christine Miserandino featured in Johnson & Johnson’s first Lupus video on their dedicated YouTube health channel!

I am honored to say I was chosen to be featured in Johnson & Johnson Network's first Lupus video. They already have a huge catalog of informative, non branded videos on their health dedicated youtube channel... but now we can finally add Lupus to the list of health, disease and medical topics!

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Help us wish Christine Miserandino from ButYouDontLookSick.com and

Help us wish Christine Miserandino from ButYouDontLookSick.com and “The Spoon Theory” a Very Happy Birthday!

 Help wish Christine a Very Happy Birthday!!!! July 27th is my birthday so this year to start off my lupus fundrasing efforts, and to kick start our team efforts I am asking all my family, friends, "spoonies" and facebook family for just one gift. I do not need a cute outfit, a day at the spa or

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