If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
We have all heard the dreaded saying "But you don't look sick?" But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, hair done, and full
The old saying goes that "good things come in small packages." But when you are like me, and are best friends with the UPS delivery man; good things can come in all size packages. As someone who is chronically ill, living with lupus, fibromyalgia and a collage of other chronic illnesses; I have lear
Christine is on Twitter @bydls and if you use the hashtag #spoonie you can connect with over 11,200 followers!
There is a amazing growing community of our readers who have been using twitter to connect by using the hashtag #spoonie at the end of every post. These people are all fans of butyoudontlooksick.com and are all somehow connected to "The spoon theory". I personally (Christine) use t
WHoooo HHhhoooo!!! Do a happy Dance! We have reached OVER 135,000 fans/ likes on our ButYouDontLookSick.com facebook fanpage! Thank you to all our readers, friends, and "spoonies" for making every part of our online community as supportive as it is. You guys are amazing!
A few years ago I got thrown from my horse. OK, who am I kidding? I am a Brooklyn girl at heart, no horses for me. But literally I felt like I had, if not been thrown from my horse, I was certainly thrown off my game. Life kept throwing me obstacles and I found it harder and harder to get around the
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I have been using the old style original mo
I hear it all the time from doctors and nurses: "Tell me your pain on a scale from 1 to 10". I always cringe at the thought of summarizing my pain and fatigue down to a number. I also get scared at the thought that I have never felt below a 4 or 5. How can every patient from a broken leg, to a chemo