About Christine Miserandino
Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate. Her writing about lupus and her “Spoon Theory” of communicating about chronic illness has been featured in numerous newspapers, magazines, medical newsletters and television media around the world, as well as on her website ButYouDontLookSick.com. Long Island Business News recognized Christine as a “Volunteer Healthcare Hero” and NY Newsday featured her as “one to watch” on Twitter as well as highlighting Christine in a full page spotlight on her work in the lupus community on Long Island and online. She has been a keynote speaker for many health organizations around the country as well as lead workshops and spoken on health related panels. She has also worked with pharmaceutical and marketing companies as a consultant representing a patients perspective. Ms. Miserandino is a guest expert on WebMD.com’s Lupus Community. She had the honor of being the host on WebMD.com’s video series called “Speaking of Lupus”
Christine is currently a member of the board of directors for the Lupus Alliance of America (National) as well as the Lupus Alliance of America Long Island/Queens Affiliate. She is also a member of the Society for Participatory Medicine, which supports numerous activities to help promote participatory medicine and the e-patient movement. The Society aims to advance the understanding of physicians and other professionals in the importance of well-informed, empowered and engaged patients making informed decisions about their care and treatment. This mission statement aligns with Christine’s views and passion. Christine is quoted and is listed as a reference in many books including CNN’s Elizabeth Cohen’s “The Empowered Patient”
From the age of fifteen, Christine Miserandino has been diagnosed with a myriad of illnesses from Chronic Fatigue Syndrome to Epstein Barr, and finally, many years later to a determination of Lupus. As though battling a shopping list of symptoms, Christine has consistently been told, by both well-wishers and doctors alike, “But you don’t look sick.” as if that was some kind of compensation for being chronically ill. Many times, being pretty or not sickly looking, made it harder to validate an illness you cannot see.
Christine started out life with dreams of being a dancer on Broadway. She was classically trained for years and studied at The High School of Performing Arts inNew York City. She enjoyed acting, modeling and dancing. Just when a dancing career was on the brink, she was told that dancing would not be a good career choice for someone with joint pain. Christine studied atHofstraUniversity. It was there that she first discovered writing about her broad range of feelings, gave her a needed outlet and a voice to her pain. She switched her creative focus from theatre and dance and found a new focus in marketing. During her years atHofstraUniversity, she was a resident assistant, an active member of her sorority Phi Sigma Sigma, and she was a Homecoming Queen finalist. Although she had a full collegiate career, she had to spend most nights in bed, instead of at parties. She had to work twice as hard to get half the results of her peers in classes, because she was in pain or was exhausted and found it hard to concentrate.
Unfortunately, her limitless career was cut short due to complications with her illness. She was forced to leave school because a flare with Lupus was out of control. Plagued with heart and breathing problems, as well as pain and debilitating fatigue, Christine was left with no other choice but to take a medical leave from both school and her job. While most young adults are concentrating on their future careers, salaries, or a love life, Christine was worrying about medications, hospital stays and how to pay her bills.
Because Christine has lived with lupus for over 18 years she is dedicated to helping those with Lupus through her writing, speaking, volunteering, and work as a patient advocate. Christine with her family and friends has been the top fundraising team for most of the Lupus Walks. They take pride in trying to raise more funds then the year before. This year she has raised over $11,000. Unfortunatly, it seems Lupus never comes alone and since her initial diagnosis, has also been diagnosed with fibromyalgia, Sjögren’s syndrome, Raynaud’s disease and neuropathy. When not advocating for lupus awareness; Christine loves spending time with her daughter Olivia and her family.
To contact Christine please click here. Please note that Christine recieves a tremendous amount of email a day, so if you are trying to contact her for a possible speaking engagement, product reviews, advertising, or other assignment please be specific in the subject line. Thank you.