Please Don't Ask My Dad About Lupus! The Answer Might Involve Jello.

Please Don’t Ask My Dad About Lupus! The Answer Might Involve Jello.

If you ask my dad about Lupus he will give you a very seemingly odd answer.  He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string.  It's one

[ 14 comments ] | [ read more ]

May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?

May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?

Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with

[ 4 comments ] | [ read more ]

No Rhyme or Reason. I have done all I can do.

No Rhyme or Reason. I have done all I can do.

What to do when you have done everything, and still feel like crap. There are days when I feel really crappy. Maybe I didn’t take my meds on time or I overdid the day before. What I really hate is when I seem to have done everything right and I still feel so wrong. The other day the weather was

[ 20 comments ] | [ read more ]

The Death of a Dancer - Who am I?

The Death of a Dancer – Who am I?

I was born a dancer. Well, I guess I was born a little girl who liked to move then I became a dancer. As a baby, music soothed me and I loved to wiggle and move. My mother remembers me spinning and twirling around the house to any music that was playing on the radio. When I didn’t have music, I wo

[ 93 comments ] | [ read more ]

My Roulette Kinda Life. You Just Never Know.

My Roulette Kinda Life. You Just Never Know.

I remember going to the bright lights of Atlantic City and watching people play roulette. I would just walk around and watch people. I liked to watch the “high rollers” because they seemed so carefree with amounts of money that would make me sick, if I lost. For a moment, I would love to be able

[ 49 comments ] | [ read more ]

Christine Miserandino featured in Johnson & Johnson's first Lupus video on their dedicated YouTube health channel!

Christine Miserandino featured in Johnson & Johnson’s first Lupus video on their dedicated YouTube health channel!

I am honored to say I was chosen to be featured in Johnson & Johnson Network's first Lupus video. They already have a huge catalog of informative, non branded videos on their health dedicated youtube channel... but now we can finally add Lupus to the list of health, disease and medical topics!

[ 22 comments ] | [ read more ]

Help us wish Christine Miserandino from ButYouDontLookSick.com and

Help us wish Christine Miserandino from ButYouDontLookSick.com and “The Spoon Theory” a Very Happy Birthday!

 Help wish Christine a Very Happy Birthday!!!! July 27th is my birthday so this year to start off my lupus fundrasing efforts, and to kick start our team efforts I am asking all my family, friends, "spoonies" and facebook family for just one gift. I do not need a cute outfit, a day at the spa or

[ 10 comments ] | [ read more ]

Book Review

Book Review “A Mom’s Story” by Brenda Blackmon

Every once in a while a book, a movie, or a TV show comes along that really touches your heart- your core. It makes a difference in your life and resonates with you, as something special. Recently, I read Brenda Blackman's book "A Mom's Story" and it was that same kind of experience. "A Mom's Story"

[ 2 comments ] | [ read more ]

Nick Cannon announces he has a

Nick Cannon announces he has a “lupus-like” condition and we wish him our best, but what exactly does “lupus-like” mean?

Nick Cannon says he has a "lupus-like" condition according to many sources including people magazine. It does explain the recent health problems, but why cant stars ever come out and just say they have lupus. Why does it have to be "pre-lupus", kinda -like-lupus, or borderline lupus? Is that like be

[ 69 comments ] | [ read more ]

Christine Miserandino Hosts WebMD Lupus Community TV Series - More Videos Posted! Brain Fog

Christine Miserandino Hosts WebMD Lupus Community TV Series – More Videos Posted! Brain Fog

Cozy up, have a seat on the couch and chat with Christine and some friends! That is exactly what it will feel like when you take the time to watch these new videos from WebMD.com WebMD.com has launched a new community TV series called "Speaking of Lupus". The series is hosted by Christine Mi

[ 8 comments ] | [ read more ]