Please Don't Ask My Dad About Lupus! The Answer Might Involve Jello.

Please Don’t Ask My Dad About Lupus! The Answer Might Involve Jello.

If you ask my dad about Lupus he will give you a very seemingly odd answer.  He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string.  It's one

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Look Out World... I'm Back In The Saddle Again!

Look Out World… I’m Back In The Saddle Again!

A few years ago I got thrown from my horse. OK, who am I kidding? I am a Brooklyn girl at heart, no horses for me. But literally I felt like I had, if not been thrown from my horse, I was certainly thrown off my game. Life kept throwing me obstacles and I found it harder and harder to get around the

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Help us wish Christine Miserandino from ButYouDontLookSick.com and

Help us wish Christine Miserandino from ButYouDontLookSick.com and “The Spoon Theory” a Very Happy Birthday!

 Help wish Christine a Very Happy Birthday!!!! July 27th is my birthday so this year to start off my lupus fundrasing efforts, and to kick start our team efforts I am asking all my family, friends, "spoonies" and facebook family for just one gift. I do not need a cute outfit, a day at the spa or

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See Christine July 31, 2011 Blues on the Bay for Lupus - Maritime Museum Long Island, NY

See Christine July 31, 2011 Blues on the Bay for Lupus – Maritime Museum Long Island, NY

  Grab the kids, Bring your friends, and enjoy the day by the bay! Blues on the Bay for Lupus, Sunday, July 31st at the Long Island Maritime Museum in Sayville. 86 West Avenue, West Sayville, NY *This is a rain or shine event. It was so much fun last year to meet a few new "lupus friend

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Come celebrate Christine's Birthday and the 8 year anniversary of ButYouDontLookSick.com

Come celebrate Christine’s Birthday and the 8 year anniversary of ButYouDontLookSick.com

Come celebrate my birthday in NYC! We are bringing together family, friends, "spoonies", and some new online friends to have a special night for a great cause! Wednesday July 20th from 6:30- 9pm at the RS Pop Shop -Roger Smith Hotel in NYC we have planned the perfect happy hour... a ton of fun w

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Christine Miserandino and

Christine Miserandino and “The Spoon Theory” featured in New York Newsday

Christine Miserandino founder of ButYouDontLookSick.com and author of "The Spoon Theory" was featured in New York Newsday on Sunday May 1, 2011. We know that many of our readers wanted to see this, but could not access the website directly to see and read the article. We have attached article and ph

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Introducing the Official “The Spoon Theory/ I am a Spoonie” Video by Christine Miserandino

Introducing the Official “The Spoon Theory/ I am a Spoonie” Video by Christine Miserandino

A slide show movie of my life, how "the spoon theory" started, and how this HUGE internet community has been formed around the world to give support, encouragement and information by using butyoudontlooksick.com and #spoonie to connect. This has been an incredible ride! THANK YOU! PLEASE share th

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Lupus - A Mother's View

Lupus – A Mother’s View

IN Honor of Mother's Day in the US, my mother wrote this article about being a mom of a child with Lupus. My daughter Christine has had Lupus, with the accompanying vast array of symptoms, since she was 15 years old. During college, in her attempt to explain her illness, she wrote about Lup

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We All Have Lupus. - My Speech from The Lupus Gala Brunch

We All Have Lupus. – My Speech from The Lupus Gala Brunch

In Honor of Lupus Awareness Month. The following speech was given by Christine Miserandino - Donato at the Lupus Gala Brunch given by the Lupus Alliance of Long Island/ Queens. It is titled "We All Have Lupus" Thank you to the Lupus Alliance and the Board of Directors for this honor. I speak

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