May 11, 2016 |
christine |
Featured, Spoon Lady Speaks |
45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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TAGS: awareness, fibro, fibromyalgia, may 12, spoonie
May 10, 2016 |
christine |
Articles, Featured, Personal Essays |
20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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TAGS: angry, dad, jello, lupus, metaphor, miserandino, sle
May 9, 2016 |
christine |
Featured, Spoon Lady Speaks |
6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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TAGS: lupus, lupus awareness, may 10, orange, purple, sle, spoonie
A Poem submitted by one of our readers.
(Note: I have rheumatoid arthritis and a bad spinal injury, I'm 29 and have lived in constant pain since I was 23)
I don't look sick
this is true
I look the same
as all of you
the pain I have
you'll never see
held all back
but never free
torment and chaos
wo
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14th Annual Walk-Along for Lupus was on Sunday October 21, 2007. It was a sunny and breezy beautiful day. As of November 2, 2007, The Lupus Alliance has received over $246,000.00!!!! Every day there is more money coming in! (You can still donate to our team)
I was happy to hear that our team - Th
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Christine Miserandino's writing and speaking engagements:
Media: Television
Keeping Kids Healthy : Lupus A Medical Mystery - Featuring Christine
Miserandino
Keeping Kids Healthy (PBS and American Public Television) Nationally
Syndicated won a 2005 New York Emmy Award (11/2005) re-aired (2/2006,
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Happy Halloween! Well in the humor of the season it’s the perfect time to talk make-up. What do you mean you don’t like blue eye shadow? No wait! Hear me out!
Halloween is a great time for both reflection, release and expression. A time where every adult can be a kid and the night becomes a fun
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Allinanchor.com offers tips and suggestions for website owners, bloggers, and web developers on search engine optimization, brand management, traffic building, web design, and more. Content is updated often, and includes re
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4rehabilitation.com is a non-profit drug rehabilitation referral service that provides those seeking help with addiction with a referral to a drug treatment facility. The website offers information for identification, treatment, and recovery of drug and
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Here we hear all kinds of controversy about day care for working Americans as another presidential election runs on and on through the mud puddles. What about those of us with invisible illnesses?
Day care is great, affordable day care is even better, but what about the single mother? More to the
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Ever since lung cancer forced Denise to become bed bound, Chili, my cocker spaniel, and I had been visiting on Friday afternoons. Chili jumped right up on the bed -- first sniffing for bits of food lost in the tangle of blankets and sheets and then curling up next to Denise for a nap. Over the mont
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A poem about cancer submitted by one of our members.
Plastic bottles stood in disarray,
A field of soldiers after battle.
Some had lost their child-proof helmets,
Their bodies overturned and empty;
Others were simply abandoned
For those with more potent content.
None alone could deter the enemy,
A
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It is that time of year again!
My family, friends and I are walking in the annual Lupus Walk on Long Island, NY. This has been a family tradition that has meant allot to me through the years. The Lupus Alliance has helped me and my family throughout the years and this is our way of helping them cont
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