May 11, 2016 |
christine |
Featured, Spoon Lady Speaks |
45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
[ read more ]
TAGS: awareness, fibro, fibromyalgia, may 12, spoonie
May 10, 2016 |
christine |
Articles, Featured, Personal Essays |
20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
[ read more ]
TAGS: angry, dad, jello, lupus, metaphor, miserandino, sle
May 9, 2016 |
christine |
Featured, Spoon Lady Speaks |
6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
[ read more ]
TAGS: lupus, lupus awareness, may 10, orange, purple, sle, spoonie
"Get Better Get Well Gifts" month at ButYouDontLookSick.com! Let us help you find that perfect gift!
When someone we know is sick, we sometimes feel like we have to give them flowers, chicken soup, or a heating pad. And although all of those are great items, sometimes it is the fun and "for no reaso
[ read more ]
September is "Get Better Get Well Gifts" month at ButYouDontLookSick.com! Let us help you find that perfect gift!
It is simple. If you smell good, you look good, and you feel good. Use all the patient's senses to start helping them to feel better. Touch, taste, smell, sight, and sound, they can all
[ read more ]
Halloween is one of my favorite times of the year and while last year I focused on great make-up tips I learned in college, this year I’m going to show you short-cuts to save both time and money on creating a costume and a
party, from things you have at home, without the usual effort! You can use
[ read more ]
The other day I was easily preparing dinner in the kitchen for my children and my sister and her children. My five year old nephew was sitting at the table very anxiously awaiting our chicken fettuccine meal and assuring me that this was going to be a very good dinner. He was clearly excited. I w
[ read more ]
Managing a business is difficult, but adding in chronic pain, it can seem impossible. Every business and their demands will vary, however, incorporating some of these tips may help decrease symptoms and increase your profits.
Take time to identify if there are patterns in how you feel, whether it
[ read more ]
September is "Get Better Get Well Gifts" month at ButYouDontLookSick.com! Let us help you find that perfect gift!
When kids are sick or in the hospital, what is a good gift? Flowers aren't really appreciated by a 4 year old, and cards aren't that great if you can't read. We found some perfect get we
[ read more ]
September is "Get Better Get Well Gifts" month at ButYouDontLookSick.com! Let us help you find that perfect gift!
They say that the fastest way to the heart is through the stomach! As long as the patient does not have any dietary restrictions (check first), then these gifts will be sure to be a hit!
[ read more ]
In 1990 the Federal Government passed a law called the Americans with Disabilities Act. The Act essentially “forced” any business that dealt with the public, to provide that public access to be able to purchase their product. The understanding of the law is that once you start sell something to
[ read more ]
By Shobha S. Krishnan, M.D., Author of The HPV Vaccine Controversy
Over the past two years, the O-N-E L-E-S-S campaign for Gardasil, the new HPV vaccine to protect against cervical cancer, has brought discussion about the human papilloma virus to the forefront, shining new light not only on the vacc
[ read more ]
This month we had a contest and asked some of our readers, members and volunteers to write a creative peice about What has BYDLS and "the spoon theory" meant to you?
The short essay was written by one of our readers.
The Spoonie Career
One for you, one for me.
Shall I make you a cup of tea?
With
[ read more ]