May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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May is Lupus Awareness Month! How Will You Spread Awareness? Although lupus can affect any part of the body, most people experience symptoms in only a few organs. This list has the most common symptoms of people with lupus. SYMPTOMS OF LUPUS: Symptoms Occurrence Achy joints (arthralgia) 9
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May is Lupus Awareness Month! This funny list was written by the members of our message boards It made me laugh, and I wanted to share it with all of you. Sometimes it pays to have a sense of humor! Any conversation can suddenly turn into a round of "Charades". A "good hair day" is whe
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In Honor of Lupus Awareness Month. The following speech was given by Christine Miserandino - Donato at the Lupus Gala Brunch given by the Lupus Alliance of Long Island/ Queens. It is titled "We All Have Lupus" Thank you to the Lupus Alliance and the Board of Directors for this honor. I speak
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(EDITORIAL NOTE: This is an update to TRAVEL TIPS article written for butyoudontlooksick.com by Karen Brauer. This was and still is one of our most popular and helpful articles. Click here to read the original.) If you haven't flown for a few years, you may be confused by the new Transportation Se
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I thought I would share the Relaxation Techniques that I have learned, in hope that they will help some of you. Relaxation can help lower blood pressure, promote a feeling of wellness, and hopefully can help bring on a restful sleep. If there is one thing that I have noticed, it’s that stress p
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Even if you no longer go on vacations, there may be times you must travel for business or to attend family events. Leaving home for any reason, especially when traveling by airplane, requires careful planning as we are required to bring more items from home and need to fit them into less luggage.
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For those with chronic illness, it can be a matter of importance to keep one's feet warm and protected, even when at home. Socks are cozy but not very sturdy, and wearing regular shoes in the house can be less than comfy. My favorite solution so far has been the Isotoner line of slippers. I've be
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We have received a lot of positive feedback from our recent article titled "Do you need a job? Consider hiring yourself!" In fact, I would like to share some of my own personal experiences with self employment. Times are tough, and we could all use a little more income. I decided to look int
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If you are like me, you hate buying butter, it's hard to deal with , it's hard to cut, hard to spread, you need to keep it in the fridge or it goes rancid. I never buy it. If you have problems with your hand weakness, butter is definitely a no go, your have to have a real good grip on that knife
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I discovered Reef flip-flops about 10 years ago and I absolutely love them. As soon as we have the first warm day of spring I’m wearing mine outside and they are my number one footwear for the whole summer. I wear them everywhere – I have shopped, partied, gardened, even hiked in them. I also
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
