May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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My "Waiting Bag"- Since I unfortunately spend alot of time in doctors' waiting rooms, I quickly learned to make the most of this seemingly wasted time. I learned this skill from my over achiever mother, who used every moment as a chance to get something done. Since I became sick at a young age,
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I know they mean well. I mean, it may not seem that way at the time to them. I may roll my eyes, dramatically sigh and wince at the friendly “suggestions” that innocent friends and family members offer up to me at random intervals of my life. I am learning as the years go by to smile and let the
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I use heating pads almost every day. The have become a part of my nightly ritual before bed partly because I have sore muscles often and heat helps; but also because I tend to have bad circulation and I am frequently cold. It is not always convenient to use a popular type microwave heating pad espec
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The title is ominous, I know. But for so many of us that suffer from chronic illnesses, it’s an all too true reality. I must preface this by saying that not all people who suffer with a chronic illness experience this. However, the subtleties of it grow as time passes and one is confronted w
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Laughter is the best medicine. Top Ten Worst Comments Commonly Made To Someone Who's HIV+: 1) "Well, you know, it's not the death sentence it once was." Really?! That sure is good to hear, 'cause I thought I was a goner! *wipes brow* 2) "Have you Googled it? There's lots of good information o
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Growing up, I was never one of those people who marched to the beat of their own drum. I watched with envy the girls who had a fashion sense all their own and a fun quirky hairstyle that made them stand out in a crowd. I wished frequently that I was the type of woman who said exactly what was on
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I recently participated in a program called Photo I.D. which is a 2-3 minute mini-biography using pictures and your voice only. This will be aired on Verizon Fios Channel 1 in New Jersey and Long Island. It was a fun experience. Here is the video!
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I’m a butyoudontlooksick.com “regular.” By that I mean I read all the posts, follow on facebook and stay updated via Twitter. However, I have never commented or responded to all the wonderful words or stories from the digital support group Christine has created. That is, until now. See,
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My daughter Christine has Lupus and she thinks she is invincible. She tries to overcompensate for the times she feels like hell, by being Superwoman, Supermom and Martha Stewart, all rolled into one. In the weeks preceeding Christmas her home looked like a Winter Wonderland, tastefully decorated wi
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I just got back from a Disney vacation. Actually, let me correct that…I just got back from a Disney vacation for 6 days. I just got back from a Disney vacation for 6 days in the coldest freak weather Florida had on record. I just got back from a Disney vacation for 6 days in the coldest
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
