May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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Now that my hands have been giving me more problems than usual, I was finding it very hard to lace and tie my sneakers. I hated the idea of not wearing my favorite sneakers, but I didn't think I had any other option. I found speedlaces.com and saw a simple solution. This little lacing tool w
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I had a bad week. I wasn't feeling well and I felt so useless because I couldn't get the things I wanted done, accomplished. I was tired with a fever and I just didn't seem to have the energy to run errands. A friend of mine suggested I try peapod.com It is an online grocery store and they deli
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Recently, it has been suggested to me that because I am receiving treatments regularly, the treatments mean that I’m not really sick. The assertion is that on treatment, I lead a “basically healthy” life and that I am “pretty normal”. Well, let’s go ahead and examine this idea of norma
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“Is this gluten free?” Loaded question? You betcha, especially when posed by the smallest and most finicky person sitting at my breakfast table. My second gluten free product review is going to get a pretty high scoring from me again, but don’t start thinking that I hand out spoons too easi
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We’ve all been there - the nausea and vomiting that sometimes accompany a change in medication. My doctor recently changed some medicines over the past months, so I’ve been craving a lot of comfort items lately. Everyone's "comfort" items are different, however, here are a few of mine that possi
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I can't tell you how many times I've thought of a great idea only to forget it five minutes later. Then I get frustrated enough to pull my hair out because I can't remember what I was thinking about, and then five minutes after that wonder why I'm upset. The best part is when I completely forget the
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A thought occurred to me this morning, what is like for the parents of the chronically ill? I have too many diagnoses to properly name, but the two prominent ones are Fibromyalgia and Lupus. I first started showing symptoms of chronic pain around twelve years old, but did not actually have anyth
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As someone who has been chronically ill for 12 years, I could talk in excess about the number of things I have purchased to ease both body and mind. I am almost entirely housebound, and as a result, I work diligently to make my home as disability-friendly as possible. If I had to pick ten thing
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With apologizes to Yogi Berra, chronic illness is 90% mental, and the other half physical. There are countless studies linking the physical pain to mental pain, and visa-versa. We all have experienced that stress can increase pain levels and that laughter can be a pain reliever. Often, chronic illne
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Heart racing. Flushed face. Can’t breathe. Hot and sweaty. On Valentine’s Day these phrases may conjure up images of feelings of love and desire to some. The way that certain someone makes the butterflies flutter around in a nervous stomach to most people means star crossed love is in th
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
