May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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"If anyone needs proof that God has a sense of humor, here it is: I am a middle-aged mother of four who works primarily with young, very fit men....And I, a famously loquacious person, have a job that requires me to mostly just show up, shut up, and be." This is the quote that appears on the back
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Unfortunately we live in a time, where it seems that emergencies and disasters happen quite often. Some are man-made like terrorism threats and some are natural disasters like floods and hurricanes. In any case, we need now more than ever to be prepared and it is even more important to be prepared w
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It’s 4am in the morning and storms are rolling into your area. Your three year old is terrified of storms so inevitably ends up in your room saying she’s scared. You have her climb into bed with you because there is no hope of getting her back in her own. You have hopes of getting a fe
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If you follow me on Twitter you know that I’ve been dealing with issues at work: Lack of hours; going in to work and then being sent home before even clocking in. This has been going on for two weeks. I had a mental breakdown couple of nights ago because I have not accomplished anything in what I
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My family once joked with me that I only kept guys around for a 6 month to a year and a half rotation. My mother even joined in the fun and told me not to bring someone home, unless I was “serious”, because I sure had a lot of people who were “friends”. They claimed I had an emotional spring
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Of course I try to eat fairly healthy, but there are times you just need a little indulgence. Since going gluten free I have been on the quest to find a worthy chocolate chip cookie. Of course I could try to perfect a recipe from scratch, but quite honestly I don’t have the time or patience for th
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Brain fog. The words themselves sound almost creepy…like they belong in some poorly made horror film. Say them to any normal healthy person and you are likely to get looked at like you just recited the entire works of Shakespeare in Pig Latin. Say it to a fellow Spoonie and you will get a fa
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ATTENTION: BIG ANNOUNCEMENT I am feeling very grateful today. In a world when living with chronic illness can get you down, I am choosing to think positive and hopefully pass those positive vibes on to you! I am grateful for my life, my daughter, my family, my friends, and for ButYouDontLookSick
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“I’m no good at sales.” “There’s no way I can beg people for money.” “I don’t want to annoy my friends.” “Asking complete strangers for a handout isn’t my style.” If you’ve ever uttered any of these phrases, don’t worry…you’re not alone. Even the most successful o
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“No! No! No! Yesssss!” Unfortunately, I am not reviewing an "adult" toy (Hey Christine and Steph, can I do a product review of an "adult" toy for BYDLS?) I am talking about why I love Hylunia products. The line has no preservatives, no parabens and no lanolin, which makes it a big yes for me!
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
