May 11, 2016 |
christine |
Featured, Spoon Lady Speaks |
45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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TAGS: awareness, fibro, fibromyalgia, may 12, spoonie
May 10, 2016 |
christine |
Articles, Featured, Personal Essays |
20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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TAGS: angry, dad, jello, lupus, metaphor, miserandino, sle
May 9, 2016 |
christine |
Featured, Spoon Lady Speaks |
6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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TAGS: lupus, lupus awareness, may 10, orange, purple, sle, spoonie
I can vouch that humor is healing. Being 57 now and having several bumps in the road of life, I’ve learned that it’s much better to laugh than to cry! Mr. Klein points out this book has techniques for getting through loss, setbacks, upsets, disappointments, difficulties, trials, tribulations, a
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After a recent party, I had to tackle the task of writing thank you notes. I know I always like to receive thank you notes, since they brighten up a dreary day. Likewise, I am a grateful person and want to show appreciation for any gift or favor I receive, but there are times, due to fatigue, hand p
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Thanksgiving is about giving thanks for the good things in your life. You can give thanks for friends, family, a good job, good health…wait! Good health? Raise your hands if you go through an entire week without complications from your respective conditions. No hands? I thought so. Although living
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Voting is part of what makes our nation great. You don’t have to worry about being shot while you wait in line to vote. You don’t have to sit in jail and be force fed because you want the right to vote – the suffragettes did that for you. All you need to do is VOTE!
The only way to make cha
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Need something to lift your spirits? Try Mr. Schritter’s book, “An Inside Look at Retirement in America’s Sunbelt.”
He writes with good humor and good spirit about his life in Idaho during the farming part of the year (he actually DOES grow potatoes on his farm) and about how happy he is
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"Get Better, Get Well Gifts" at ButYouDontLookSick.com! Let us help you find that perfect gift!
Sometimes, when flowers smell, cards get old, and no amount of humor is going to be funny, you are at a total loss for what to give someone who is going through a hard time. You want to give something tha
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Sunday October 19, 2008 was a cold and windy day. I am proud to say that my team (Team Donato- Miserandino Family and Friends) did not just reach our goal of $10,000 but we exceeded it and raised $11,000 for the Lupus Alliance of Long Island/ Queens.
When I originally thought due to hard economic t
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The following things are items that I or my friends have personally tried and found to be very helpful while in the hospital to make things much more bearable and enjoyable.
* Pajamas or NIGHT CLOTHES for each day. You spend all day and night in your PJ's and tend to sweat more in the hospital,(es
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It would seem the writer's strike has limited the amount of new programming offered this fall. Either that, or I have just gotten pickier about what I will view. Either way, this year, I only found three shows I wanted to test drive.
Here are my thoughts so far:
1. "Fringe", Fox, Tuesdays. This on
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This is a good time to pick up a craft and work on it. It gives you something to do while you’re stuck inside, and it will keep your lap warm!
Crochet an afghan and it will cover your lap and keep you cozy. Work on quilting a lap blanket and it does the same thing! Or you can do latch hook ru
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