May 11, 2016 |
christine |
Featured, Spoon Lady Speaks |
45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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TAGS: awareness, fibro, fibromyalgia, may 12, spoonie
May 10, 2016 |
christine |
Articles, Featured, Personal Essays |
20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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TAGS: angry, dad, jello, lupus, metaphor, miserandino, sle
May 9, 2016 |
christine |
Featured, Spoon Lady Speaks |
6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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TAGS: lupus, lupus awareness, may 10, orange, purple, sle, spoonie
My husband claims I have a fondness for “process.” I want things done in an orderly fashion. My response is that I not only want it done that way, but I need to have things completed in an organized manner. Having witnessed my mother lose track of gifts year after year, I’m determined to co
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For as long as I can remember, my parents always had a subscription to Reader’s Digest. I was never a big fan of the articles, but I can tell you this, I always went right for the funny stuff. You remember…Laughter is the Best Medicine, Humor in Uniform, All in a Day’s Work, etc. I often w
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A Poem submitted by one of our ButYouDontLookSick.com members.
If you could live in my body,
just for a day,
maybe you wouldn't think
that I feel okay.
You might understand
what it's like to be tired
by just trying to live,
just doing what's required.
If you could live in my body
you might begin t
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This is a cookbook full of treasured recipes and ideas for everything from cooking for game days to provide carbohydrates and protein to pick them up before the game and give them strength after the game, to meals for potlucks where you need a large quantity, to daily meals in your kitchen that chil
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This may sound disgusting (as it did to me,) but we heard about it last year, tried it, loved it, and I made it again last night! Hey, it's a great way to get rid of the clutter in your post-Thanksgiving fridge and look at it this way - if you hate it, the stuff is still gone!
In a casserole spray
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Holiday parties can present challenges for those looking to eat and drink healthfully. Hidden empty calories and foods that deplete your energy can lurk in common holiday foods and cocktails. And if you over-imbibe, you especially may find yourself eating foods that are harmful to your health.
Just
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The cold makes me hurt, brings illness to my cramped indoors and makes me dress my son up like an Eskimo and then rush to get him undressed when he has to pee after the hour long dressing process and before we get out the door. Snowflakes, I should only find them a dreary misery. However, I love the
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Many of us have long-held family traditions, which we feel is our duty to uphold each year. From slow roasting a large turkey and kneading homemade rolls at 4 am on Thanksgiving to baking 40 varieties of cookies around December. (I have only narrowed mine down to 25 varieties, but I'm working on it!
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Are you bored with the old everyday snack? Do you need something quick and easy, but also filling and nutritious? I am happy to share two new snack bars I have found. They are both very interesting and different from any others that I have tried before.
The first is called the Yotta bar. These bar
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I was recently blessed to be in Pennsylvania, visiting two wonderful spoonie friends of mine. We'd had a very long and busy day sightseeing around Hershey Chocolate World, followed by a wonderful family dinner with Rose's family and were totally beat! So we did what all responsible "spoonies" should
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