May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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Living with a chronic illness can be like walking a tightrope. I live with Fibromyalgia, Irritable Bowel Syndrome and a depressive disorder. In order to best manage my Fibromyalgia, it’s vital that I carefully pace myself. Too much leads to burn out, but too little activity can also worsen my s
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May is Lupus Awareness Month! How Will You Spread Awareness? By Sheldon Paul Blau, MD and Dodi Schultz In my opinion, this is one of the most current, valuable books published on living with Lupus. I found it to be very informative and easy to read, without speaking in thick, confusing medical jar
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Fibromyalgia is frequently diagnosed but poorly understood. Chronic fatigue syndrome by its very name is the source of conflicting opinion and no real consensus on treatment. What is a person to do when they discover they have one or both of these ailments? Resign oneself to an ever-deteriorating li
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IN Honor of Mother's Day in the US, my mother wrote this article about being a mom of a child with Lupus. My daughter Christine has had Lupus, with the accompanying vast array of symptoms, since she was 15 years old. During college, in her attempt to explain her illness, she wrote about Lup
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(This funny list was written by the members of our message boards It made me laugh, and I wanted to share it with all of you) Your mother-in-law calls to ask you to tape her soaps and you agree. Your husband then tells you, "We don't have a VCR", then you say, "Yes we do, in the bedroom beside
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Even after House, M.D.has mentioned the word Lupus in almost every episode of the television show, Lupus is still not a well known disease. I know a little part of me jumped up and got all excited when I heard the word Lupus on TV the first time. I will never forget the moment. I thought that maybe
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As I sit down to write this I wondered if I really am an “expert” in this subject and after much thought I realized I may not have all the answers, but I have a lot. I am a mom with two boys 8 & 15 and have traveled from Seattle to Disneyland (DLR) more than 50 times in the last 10 years,
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Lupus is not a well known disease. It is one of the diseases that many people whisper about in fancy medical shows, but never really talk about until someone they know is diagnosed. When I was a child, I always wished more famous people admitted having lupus, to help bring some much needed awareness
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May is Lupus Awareness Month! How Will You Spread Awareness? My daughter Christine has a tee shirt with the above logo emblazened on it, and I have always disliked the crudeness of that phrase. Every time she wore that shirt I would wince and tell her how I hated that expression, but she would just
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It started with Jon Stewart on The Daily Show saying, or should I say singing that Fox news was "the lupus of news" Saying it was like an autoimmune disorder that attacks itself, etc. I personally thought it was funny. We all have to have a sense of humor, right? Plus he did use it in the right cont
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
