May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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A good thing to do when you become disabled is to make some survival ground rules for yourself. They can be anything that works for YOU. The only key is that they must be totally achievable at least 95% of the time, and very realistic. I was disabled in 1998 by four failed back surgeries causing
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With Everyone Asking "What is Lupus?" Lately.... Here is a Simple Lupus Definition Lupus is a chronic inflammatory disease that can affect various parts of the body, especially the skin, joints, blood, and kidneys. The body's immune system normally makes proteins called antibodies to protect th
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Dear Lady Gaga, I just finished watching your interview with Larry King on CNN. If you knew me, you would know that running to the computer and vocalizing my thoughts to family, friends and even to you is nothing unusual! I have chosen to step up and “out” (so to speak) about my life with Lup
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This contest is super easy and proceeds will go to a great cause! Simply explain the picture, win the contest, get paid, and help people! I must say the picture is pretty crazy! INFO: For the benefit of the Lupus Alliance of America, John Scalzi, Wil Wheaton and Subterranean Press are runnin
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How many times have I woke up and decided that today is the day that I am going to start off on the right foot and wear sun block. Although I wake up with the best of intentions, I soon learn the seemingly obvious lesson that "if you don't own it, you can't use it". I start off by looking through my
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By: Montel Williams with Lawrence Grobel "At this point, one of the doctors mentioned something about this weird disease, MS, but then said that I couldn't have MS because I was in much too good a shape. I was ripped: I weighed 190 pounds; I had a twenty-eight-inch waist, with eighteen-inch
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For those in NA, AA or any other 12 step program, these simple acronyms can be helpful when you need a reminder to "stay the course". If you have any more to add, please feel free to comment on this article. AA Achieving Adulthood ACTION Any Change To Improve Our Nature BIG BOOK Believ
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I had the opportunity to speak with Mel Majoros who hosts the radio show "The Cancer Warrior" on Empower Radio. We discussed my Lupus story, as well as my latest treatment of Cytoxin which is a chemotherapy. We actually both had that medicine in common. We also had the "foggy brain" in common. W
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I found this video on youtube last night. (Yes, I couldn't sleep again) But I feel that maybe I was meant to find this video and share it with all of you. The video shows a performance of live poetry by Shanelle Gabriel from Brooklyn, NY. Not only did I identify completely with her words and experie
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The Dosie awards were created to find the best examples of social media in pharma and healthcare. We were honored to be nominated in the best patient blog category. We would like to thank the readers of butyoudontlooksick.com for helping us win 3rd place by voting for ua. We appreciate your help. Th
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
