My Social Media Selves

My Social Media Selves

It was the best of times, it was the worst of times. Well, it was probably more of the worst part. In fact, the best of times hardly seems like a qualified way to describe my day to day existence. Ok, and if you want to get technical, I totally just ripped that off from a classic novel, but the famo

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New Video: Christine Miserandino reads 'The Spoon Theory'

New Video: Christine Miserandino reads ‘The Spoon Theory’

You guys have been asking for this for a LONG time. This is me reading "The spoon theory" live at a Lupus Symposium. This video is from the speaking appearance at the Piedmont, NC LFA on September 11, 2010. Thank you to them for having me, and to Stealth Awareness for making the video. Please

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Sick Humor:

Sick Humor: “Spoonie and the City”

One thing you should know about me is that I LOVE Sex and the City. When it was on HBO, I watched it religiously. I saw both of the movies on opening weekend, of course. I own all of the DVDs. And now that the reruns are on E!, my household stops at 8pm EST week nights. Don’t call me during that h

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Gluten Free Diva: King Arthur Flour Gluten Free Muffin Mix

Gluten Free Diva: King Arthur Flour Gluten Free Muffin Mix

I would say a muffin mix is an extreme hit when your kids are requesting you make it for the third time in two weeks. When you make an excuse to stop at the grocery store so you can pick up another box, you know you love it just as much! I had noticed King Arthur Gluten Free products popping up i

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Product Review: Care TENS Unit

Product Review: Care TENS Unit

“You are going to stick what where and then put electricity through it to help my pain levels?” was my first reaction to a tens unit when used during physical therapy. The idea of putting patches with electrodes on my shoulder or any where on my body and then running electricity through it for f

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Paying People To Stay Home

Paying People To Stay Home

We don’t appear sick enough and I hear many complain about paying people to stay home.  That $1037.00 I receive in disability benefits has been a dream of mine since I was 15, when I got my first paycheck from Taco Bell and saw my deduction for Medicare and disability benefits.  Yes, this girl f

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Book Review:

Book Review: “You, the Owner’s Manual: An Insider’s Guide to the Body That Will Make You Healthier and Younger” by Michael F. Roizen, M.D. and Mehmet C. Oz, M.D.

When you have had a chronic illness for some time, particularly if specific parts of your body are affected, you tend to become an expert on that area. Some of us end up becoming so educated about our ailment that we practically qualify for our own medical degree. But how much do you know about the

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Product Review: I Lost A Lot, But I Found The NuBra!

Product Review: I Lost A Lot, But I Found The NuBra!

We've all had to give up many things since becoming 'professionally chronically ill'. Slinky dresses maybe? High heels? Pantyhose or Tights? Pants? But the thing out of all of the things I've missed having daily since getting sick, is my bra!! My body is too swollen & tender to be able to be

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The Bright Side

The Bright Side

I am a pessimist by trade. I’ve tried to change it, but I was born wired this way. I always see the glass half empty. I am always waiting for the other proverbial shoe to drop. So when I consider my illnesses, I am usually thinking negatively. I am usually looking at the downsides. But really,

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The Plan

The Plan

When I was younger, I really wasn’t sure that there was a plan for my life. Years ago, I had been in a horribly abusive marriage for six years. I tolerated things that are shocking to most people that I tell. During that time and even after it ended, it was the lowest period of my life. I wasn’t

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