I've Learned...

I’ve Learned…

This hasn't been an easy road to travel the past 14 years. There's been a lot of moments I've wished I could get back, a lot that failed to go as planned. I've faced a lot of disappointments and seen a lot in my life change. I've learned that I'm not alone. I've found community and people who can

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Poetry: Tired

Poetry: Tired

I tire of my body. I tire of my pain. I tire of the whirlwind scraping the walls of my skull. I tire of the weeping willow cracking and sprouting within thine eyes. I tire of courage. I tire of strength. I tire of personal earthquakes that make morning coffee a joke! I tire of cramping: calf, thigh,

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Parenting From The Couch

Parenting From The Couch

Lauren Bacall once said “I'm not a sedentary person. I've always been active.” I stumbled upon this quote when tinkering online while my kids played and was something I could relate to back in the day. I say that with a wistful look as I can no longer say I’m that active person. For me I have

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Book Review: Undead and Unwed by: Mary Janice Davidson

Book Review: Undead and Unwed by: Mary Janice Davidson

We've all been faced with jobs we don't want. For Betsy Taylor, it's being queen of the dead. Of course, she doesn't learn this until she is hit by a car on her 30th birthday (as if that wasn't bad enough) and discovers no matter what she does she can't stay dead. Being newly dead brings it's own

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I Support Benlysta....and I Don't Have Lupus

I Support Benlysta….and I Don’t Have Lupus

Benlysta is the first new drug approved for Lupus in 50 years. It's not for everyone with Lupus, but for those who can benefit, that's awesome! Now, I know some are thinking, I don't have Lupus, why should I care about Benlysta? You don't have Lupus - why are you writing an article about Benlysta. W

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The Perfect Spoonie

The Perfect Spoonie

From day one, I have been a perfectionist. I know that when I was in preschool, the teacher told my parents that if I could not cut with those rounded tip scissors on the exact line, then I just wouldn’t do it. And that was only the beginning of my quest for perfection. But that’s a pretty diffi

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Be Prepared. Where is Your Stash?

Be Prepared. Where is Your Stash?

Most of us have them and some of us even forget where they are due to the lovely fog that comes with Fibromyalgia and other conditions! I currently have five different locations that I stash emergency Spoonie supplies. 1. My nightstand is the primary place where I keep all of my medicines. I norm

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A Spoonie Meltdown

A Spoonie Meltdown

We interrupt your regularly scheduled program to bring you this Spoonie Meltdown. Last week started like any other week. Well, that might be overstating it. I had been on vacation. I came back Monday to an already overfull work week and hundreds of emails to respond to from the days out. I also had

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April Awareness: Let's Learn About Sjogren's Syndrome

April Awareness: Let’s Learn About Sjogren’s Syndrome

Every month has awareness about something, sometimes several things. April is no exception. April is the awareness month for Autism, Child Abuse, STD’s, IBS, Parkinson’s, Rosacea, and the list goes on and on. I am going to talk about one that is not often heard of, Sjögren’s Syndrome. Accordi

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Keeping Passover Tradition While Managing Lupus

Keeping Passover Tradition While Managing Lupus

As a Lupus patient, the Jewish holiday of Passover (which this year starts on the night of April 18) is one that resonates with me. It is the holiday that retells the biblical story of Exodus where the Jewish slaves overthrew the Egyptian pharaoh. Moses led the Jews on a journey through the desert t

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