May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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I’ll admit it…..I almost backed out at the last minute. I had been planning on attending the LFA NC Lupus Summit for some time now and had visions in my head of overwhelming knowledge and epiphanies coming my way. I dreamed of finally being in a room filled with people who didn’t ask me ho
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One of the most perplexing yet entertaining television shows has come to an end. Season Six was relatively brief, just 16 episodes, but it packed a wallop, and the two and a half hour conclusion which aired on May 23 was polarizing. But now that the survivors of Oceanic Airlines flight 815 have co
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Today I was on the radio for National Invisible Illness Week talking about Organizing Tips & Parenting When Ill. The first half of the show was organizing tips (I def need to go re-listen to that one!). The 2nd half of the show Jill Hart joined Lisa Copen to talk about parenting. Lisa and Jill
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There is power in numbers. We have tens of thousands of readers of butyoudontlooksick.com... we could move mountains one pebble or rock at a time. Every donation counts! For the 7 year Anniversary of ButYouDontLookSick.com we are asking our readers, FB friends, "spoonies", sponsors, etc to donate
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It is important for every patient to take an active role in their own healthcare. A personal health record is designed to grow as your needs grow or your health changes, and should be updated as often as needed. It is important to record how your health changes and mark your progress. Take the firs
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Seeing the doctor is rarely what I would call fun. You are usually there because you don't feel well and you usually fall into the following categories: Having a diasnosis you thought you had walking into a door- and possibly seeing a new doctor for a 2nd opinion, or a treatment/ investigation of s
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What a great fundraiser! The Lupus Alliance of America, Long Island Queens Affiliate is Raffling off tickets to win an autographed guitar by Lady Gaga, to help raise funds to care for those living with lupus and to fund research into the cause and cure.he Lupus Alliance of America, Long I
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ROCKVILLE, Md.--(EON: Enhanced Online News)--Human Genome Sciences, Inc. (Nasdaq:HGSI) and GlaxoSmithKline PLC (GSK) today announced that the U.S. Food and Drug Administration (FDA) has granted a priority review designation to BENLYSTA® (belimumab) as a potential treatment for systemic lupus er
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When we're on the go, many of us grab a protein bar as a snack. While a protein bar can provide quick energy, it also can provide quite a bit of sugar and an equally quick post-energy letdown, not to mention some dubious chemicals which make them questionable for certain medically necessary diets. I
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Christine Miserandino from ButYouDontLookSick.com will be the keynote speaker for the Piedmont, NC chapter of the Lupus Foundation. This is the 10th annual Lupus Summit on September 11th. The deadline to order tickets is September 1st-- so act now! Link to order your tickets is below. She wi
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
