May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
[ read more ]
May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
[ read more ]
May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
[ read more ]
Living with Lupus is often not a confidence-builder, but looking good is. As a Lupus patient, I have experienced symptoms ranging from uneven skin and light facial redness to spontaneous lesions and “butterfly rash”. When these symptoms manifest, the last thing on my mind is feeling pretty
[ read more ]
The year 2010 was a big year for me, disease-wise. I was going about my lonely, diseased business. I had been sick since 1995, diagnosed in 2007 and getting treatments for 3 years. At the very end of 2009, I was forced to switch insurance companies. The new insurance company denied my treatments for
[ read more ]
If you’re like me, you spend a lot of time waiting. I’m waiting at appointments, the pharmacy, for rides, and so on. This is where my Nook eReader comes in handy. In fact, the decision to purchase one came after spending 5 hours in the urgent care waiting room. I’d grabbed the pape
[ read more ]
I had been looking for a new laptop stand since I inherited my husband’s 17” one and my 13” had been passed down to our 8 year old. The 17’ laptop was too big for the cooler-fan I used to hold the smaller one in my lap. I also tried setting the larger laptop just on my lap, but that got to b
[ read more ]
He had a half inch cut on his finger... it wasn’t even bleeding that bad and certainly didn’t warrant the barrage of “Grey’s Anatomy” style nurses snatching him up and herding him towards the coveted double doors. I sat watching him like a hawk from the minute he walked in to the minute
[ read more ]
A simple USB mouse. An ordinary tool but tough to use with stiff and achy hands. After I had to have surgery on my right wrist I wasn’t able to use my right hand for over a month. It was supposed to be ‘routine’ outpatient surgery, and my recovery should have been quick, but nothing is routi
[ read more ]
As I began to trace back the beginnings of my struggle with my weight, I have come to the conclusion that I was a fat fetus. Weighing in at almost 10 pounds upon my butt first entry into the world, I have no proof of ever being a “normal” size since. I even found a faded photograph myself at 2 y
[ read more ]
Sure, it’s used for cooking, but that’s not its full potential. Days when my fingers are swollen, I use it push buttons on my blender or select the crushed ice option on my fridge, but that’s just my kitchen. In my car I use it for tricky seat belts buttons, my son’s car seat and I have even
[ read more ]
"Oooooohhhhh.” “Oh, yum.” “This is sinful.” No that wasn’t the audio heard while flipping past the adult pay-per-view channel, but comments from coworkers around the table unknowingly enjoying a gluten free dessert! My first gluten free product review gets an enthusiastic thumbs up
[ read more ]
Chronic Fatigue Syndrome (CFIDS), known outside the United States as Myalgic Encephalomyelitis (ME), is a poorly understood, overwhelming and controversial ailment. It can affect every part of the body including brain function. The severity can range from a mild intrusion on daily activity to comple
[ read more ]
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
