My Friends In

My Friends In “The Box”

My friends are in a box.  Yep, you read that right….a box.  There are hundreds of them…neatly packaged in an easy to access square. These people don’t mind when I cancel plans I had with them because I couldn’t keep my eyes open.  They don’t lift an eyebrow when I mummify myself with

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“Sick Humor” The ABCs of Spoonie Thanks

Alright, I’ll say it.  I’m usually the one to vocalize what most people keep to themselves, which more often than not, gets me in to trouble.  However, something inside of me is convinced that in this Spoonie corner of the world, I’m not alone.  It’s sometimes hard to be thankful at Thank

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Help us wish Christine Miserandino from ButYouDontLookSick.com and

Help us wish Christine Miserandino from ButYouDontLookSick.com and “The Spoon Theory” a Very Happy Birthday!

 Help wish Christine a Very Happy Birthday!!!! July 27th is my birthday so this year to start off my lupus fundrasing efforts, and to kick start our team efforts I am asking all my family, friends, "spoonies" and facebook family for just one gift. I do not need a cute outfit, a day at the spa or

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The

The “spoonie” Small Print

Batteries not included. Shipping and handling extra. Minimum purchase required. Small print is everywhere and on just about everything. I come with a Spoonie version of small print: if I feel up to it. Whenever I make plans, I always have to add “if I feel up to it.” I never know how I will f

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Get Well Gifts from The ButYouDontLookSick.com Store

Looking for a unique get well gift? Have you made a rule to not let Lupus get you down? How about a Tee shirt that reads ‘I am Stronger than Lupus!’? Looking for the right thing to say to those who tell you that you are always tired? We think a T-shirt that says ‘I am Too Tired To Argue With Y

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Support I’m a Spoonie! add a #spoonie twibbon to your avatar/ profile now! – OVER 10,000 people have – join us!

Do you have a profile picture, icon, or "avatar" that you use on facebook or twitter, etc. Support I'm a Spoonie! add a #spoonie twibbon to your avatar now! People have seen others on facebook and twitter with the spoon on their pics and it is SO easy to do! So many have asked me how! Join over 10,0

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Join in the fun! Add the “Spoonie” Twibbon/ Sticker to your profile pics! UPDATE- OVER 9,200 people have added the spoonie twibbon!

Join in the fun! Add the “Spoonie” Twibbon/ Sticker to your profile pics! UPDATE- OVER 9,200 people have added the spoonie twibbon!

Join in the fun!  UPDATE- OVER 9,200 people have added the spoonie twibbon/ sticker on both twitter and facebook! It is amazing to start seeing spoons popping up all over the place. I keep hearing from readers of this site how fun it has been for people in their life to ask "hey what is up with the

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October 22, 2011 - Using Writing and other Artistic Expressions to Cope Speaker: Christine Miserandino - Lupus Alliance of Long Island and Queens

October 22, 2011 – Using Writing and other Artistic Expressions to Cope Speaker: Christine Miserandino – Lupus Alliance of Long Island and Queens

Using Writing and other Artistic Expressions to Cope Speaker: Christine Miserandino, Owner of Butyoudontlooksick.com, lupus advocate, frequent lecturer on lupus, and Board member of the Lupus Alliance of America LIQ Affiliate When: Saturday, October 22nd, 2011 Where: North Bellmore Public Libr

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The High Price of Understanding

The High Price of Understanding

Remember when I was thankful my brother didn’t get my illnesses? He’s beginning to get it. After Justin graduated college in May, he moved back in with my parents until he could tie up loose ends and leave the area. My parents live on a lake, so Justin was enjoying a great summer. Until

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Letting The World Turn Without You...

Letting The World Turn Without You…

The hardest lesson I've had to learn in living with chronic illnesss is that I can't do it all. I'm a overachiever by nature. I want to do it all, have it all, see it all, be the girl who never says no. Letting people down, and of course, myself down, was the horror that I feared more than anything.

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