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September is Ovarian Cancer Awareness Month. Do You Know The Symptoms?

It is expected that over 21,000 women will be diagnosed with ovarian cancer and 15,000 women will lose their lives from the disease this year alone in the United States. Women usually do not talk about gynecological issues, but we need to stop the silence. Ask questions. Get informed. Talk to you do

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September is Childhood Cancer Awareness Month

Families, caregivers, charities and research groups across the United States are observing September as Childhood Cancer Awareness Month. In the U.S., over 12,000 children under the age of 21 are diagnosed with cancer every year, approximately 3,000 of them will not survive the disease. A diagnosis

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Some Tech Issues: We will back to our Spoonie selves as soon as possible! Thank you for your patience and understanding.

Please note: we are aware that some of you have received unusual or "spammy" daily newsletters. As you know from 9 years of newsletters this is not my normal way of doing things. This is not my "voice". Our email newsfeed was hacked/ spam into. We are working on the problem and it should be fixed s

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Can you understand your doctor's handwriting? I can't! Tips to read your prescriptions

Can you understand your doctor’s handwriting? I can’t! Tips to read your prescriptions

The Latin and English abbreviations on prescription slips are “shorthand” directions for how and when a medication is to be used, and other special directions for use (for example, at bedtime, the number of times a day, orally or topically, and so on) that are put on the container’s label prep

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Did you know July is National Ice-Cream month?

Okay, I know they have a "celebration month" for everything nowadays, but I will take any excuse to have some ice cream. Hey, it is our duty to have a scoop and celebrate!  What is your favorite flavor?  -Christine

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June is Scleroderma Awareness Month

June is Scleroderma Awareness Month

WHAT IS SCLERODERMA? Scleroderma is a chronic, often progressive, autoimmune disease in which the immune system attacks its own body. Scleroderma means “hard skin.” It can cause a thickening and tightening of the skin. In some cases, it causes serious damage to internal organs including the l

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Hellllllooooooo Monday!

Monday came earlier than I expected if you know what I mean. :) I Wasn't ready for the morning as the sun peaked in my window. I wanted to curl up under my covers and pretend I had "just one more hour". But I know I would be asking for just one more hour of rest all day. For me, there is never enoug

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The

The “spoonie” Small Print

Batteries not included. Shipping and handling extra. Minimum purchase required. Small print is everywhere and on just about everything. I come with a Spoonie version of small print: if I feel up to it. Whenever I make plans, I always have to add “if I feel up to it.” I never know how I will f

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Get Well Gifts from The ButYouDontLookSick.com Store

Looking for a unique get well gift? Have you made a rule to not let Lupus get you down? How about a Tee shirt that reads ‘I am Stronger than Lupus!’? Looking for the right thing to say to those who tell you that you are always tired? We think a T-shirt that says ‘I am Too Tired To Argue With Y

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Spoonie question of the day: Have you ever been mistreated, or made to feel uncomfortable because your disease or disability was invisible or not obvious?

How did you handle it? Did you choose to keep quiet and ignore it? Did you speak to that person or ask to speak to a manager? If you wrote a letter or said something- please share here in the comments section some of your wording. Many people can't find the right words, but maybe if we all share

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