These are our articles.

Twentysomethings and Lupus - A New Generation of Friendship and Fundraising

Twentysomethings and Lupus – A New Generation of Friendship and Fundraising

Back in June I received a facebook message that changed my life.  My friend from high school, Jessica Glazer, sent me the following: “I have an idea I want to talk to you about.  I was thinking of having a party to raise money to contribute to your Lupus fundraising efforts.  It could be a pla

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Election Day Thoughts – Be Your Own Advocate

With today being election day all over the country, it is important to remember that Spoonies must be our own advocates when it comes to getting help from our government in fighting our illnesses.  It is imperative that we take it upon ourselves to increase awareness about the need for funding for

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Food and Drug Administration (FDA) to Hold Hearing on BENLYSTA® on November 16th

Food and Drug Administration (FDA) to Hold Hearing on BENLYSTA® on November 16th

On November 16, 2010, the Food and Drug Administration (FDA) will hold a hearing to discuss the application to approve BENLYSTA® (belimumab) as a treatment to reduce disease activity in adults with active, autoantibody-positive lupus. If approved, BENLYSTA® will be the first drug to be specif

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Important Product Recall: Tylenol 8 hour caplets

Important Product Recall: Tylenol 8 hour caplets

Product Recall: On October 19, 2010 McNeil Consumer Healthcare, the company behind Tylenol, has issued a voluntary recall of 128,000 bottles of Tylenol 8-Hour caplets after receiving a small amount of complaints of a musty odor smelled upon opening bottles. Tylenol has narrowed such smell to the wo

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Quote of the Day: Let Go Of Anger and Hold on to Happiness

Hey Spoonies, Just for today try and let go of anger and hold on to happiness. Sometimes I need to be reminded to "loosen my fists" and when I do, I read this quote: "You can't shake hands with a clenched fist." -- Indira Ghandi Love and spoons, Christine

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Founder of ButYouDontLookSick.com to Speak at Atlanta, Georgia Lupus Symposium

Founder of ButYouDontLookSick.com to Speak at Atlanta, Georgia Lupus Symposium

Christine Miserandino, founder and owner of the online magazine and support system, butyoudontlooksick.com will be the keynote speaker at the Lupus Foundation of America, Georgia Chapter’s Annual Lupus Symposium.  Christine, who has been living with Lupus for over 15 years is a nationally recogni

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Sick Humor: 7 Things NOT to Do When You are Depressed

Sick Humor: 7 Things NOT to Do When You are Depressed

We all have been there. It is 2am, you can't sleep, you have a lot on your mind... and let's face facts- you are depressed. After doing all of the wrong things to combat depression, I thought I would pass on some of my knowledge to you. Hopefully you can find better things to do with your time at 2a

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The Story Behind the Giant Spoon: A Letter from a Mother Who Met Christine

The Story Behind the Giant Spoon: A Letter from a Mother Who Met Christine

It was a dream come true for me to personally meet Christine after reading “The Spoon Theory” a little over a year ago. It was one Sunday morning when my adult daughter, Carly carried in her laptop to the kitchen table where I was reading the Sunday paper and told me to read “The Spoon Theory.

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Professional Patient Tip: 10 Tips for Visiting Someone Who is Sick

Professional Patient Tip: 10 Tips for Visiting Someone Who is Sick

I have unfortunately been on both sides of this article. I have spent time visiting friends and family when they have been sick, but I have more often been the patient everyone is visiting. Many of the visits went very well, but unfortunately others didn’t go so well for them or me. Hopefully my m

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Professional Patient Tip: 10 Tips for Visiting Someone Who is Sick

Professional Patient Tip: 10 Tips for Visiting Someone Who is Sick

I have unfortunately been on both sides of this article. I have spent time visiting friends and family when they have been sick, but I have more often been the patient everyone is visiting. Many of the visits went very well, but unfortunately others didn’t go so well for them or me. Hopefully my m

[ 78 comments ] | [ read more ]