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Historic Day for Lupus Patients - Benlysta gets FDA approval

Historic Day for Lupus Patients – Benlysta gets FDA approval

  FDA approves Benlysta to treat lupus First new lupus drug approved in 56 years The U.S. Food and Drug Administration today approved Benlysta (belimumab) to treat patients with active, autoantibody-positive lupus (systemic lupus erythematosus) who are receiving standard therapy, includi

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National Patient Safety Awareness Week March 6-12

This week, March 6-12, marks National Patient Safety Awareness Week. This initiative is sponsored by the National Patient Safety Foundation which was founded in 1997. The goal of this foundation is to improve the safety of care for patients by providing information and education to healthcare provid

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March Is Endometriosis Awareness Month

Endometriosis (endo) is a reproductive disease that affects an estimated 176 million girls and women worldwide. The cause is unknown and there is no cure. Symptoms vary from woman to woman, making it a very confusing disease to understand, live with, and treat. Symptoms can include painful period

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Sick Humor: Diary of a Mad Spoon Woman

Sick Humor: Diary of a Mad Spoon Woman

I truly believe laughter is the best medicine…well as far as free medicines go.  I totally have a lunch sack full of pills that can give generic laughter a good ol’ fashioned run for its money, but nothing beats a laugh.  I’m not talking about the quiet snickers with your hand over your mout

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Assistive Devices: An Emotional and Physical Journey

Assistive Devices: An Emotional and Physical Journey

Disability. Disability is an evil, nasty word that many people cringe at, because it means that you may not be able to do something you possibly once loved, either at all, or possibly unassisted. For me, it took a decade to emotionally and mentally accept that I’m partially disabled. Only a mon

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My Spoonie Vacation In My Mind

My Spoonie Vacation In My Mind

Recently, one of my doctors asked me how my many health issues affect my every day life? The first two words to pop into my head? “All encompassing.” And it’s true. My health issues affect almost every decision I make each day: what am I going to wear today, dress for comfort, hair in a pony t

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March 1 – Today is Lupus Foundation of America’s 2011 Advocacy Day

Today is Lupus Foundation of America's 2011 Advocacy Day. Join me to urge Members of Congress to support increased funding for lupus research and education programs. Visit http://capwiz.com/lfa to make your voice heard. Don't be afraid, just write what is in your heart. Write what you would want to

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Sick Humor: The Top 10 Ways That You Know Two Spoonies Are Dating

Sick Humor: The Top 10 Ways That You Know Two Spoonies Are Dating

1.  They know each others' favorite hospital meal 2.  The smell of disinfectant becomes a turn on 3.  They exchange bodily fluids by dumping each other's urine containers 4.  Gripper socks become part of the lingerie wardrobe 5.  The only jealousy had is of IV-friendly veins 6. 

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Dreams of Yesterday

Dreams of Yesterday

I had never run so fast in my life.  Even interval treadmill running to the motivating sounds of Guns n’ Roses in my ears couldn’t compare to chasing my 3 year old son across the entire length of the park.  I was in a full out sprint, my feet barely hitting the ground before moving to make roo

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Android Epic is truly EPIC!

Android Epic is truly EPIC!

Nearly everyone carries a cell phone and while for some it’s just something they use everyday, for me it has been my sanity saver. My husband surprised me with an Android Epic two weeks after my shoulder surgery and I will never go back to another kind of phone. Since we use Sprint the Epic came t

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