THIS WEEKEND! Saturday, October 1, 2011- LFA Tri State Annual Living Well With Lupus Symposium Erdenheim, PA

THIS WEEKEND! Saturday, October 1, 2011- LFA Tri State Annual Living Well With Lupus Symposium Erdenheim, PA

Christine Miserandino of ButYouDontLookSick.com will be the keynote speaker starting off the day at the Annual Living Well With Lupus Symposium Lupus Foundation of America - Philadelphia Tri state chapter Saturday, October 1, 2011 Springfield Township High School 1801 East Paper Mill Road Erd

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The Lupus Dating Game

The Lupus Dating Game

My family once joked with me that I only kept guys around for a 6 month to a year and a half rotation. My mother even joined in the fun and told me not to bring someone home, unless I was “serious”, because I sure had a lot of people who were “friends”. They claimed I had an emotional spring

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Watch the video from the #140conf State of Now in NYC where Christine spoke about Lupus

Watch the video from the #140conf State of Now in NYC where Christine spoke about Lupus

I spoke on June 16th at the #140conf in NYC with Amanda Greene, Brenda Blackmon, and Kelly Dawn. Our panel was called "the lupus ladies of twitter". We spoke about how social media has not only brought us together as a panel from across the country, but about how social media (twitter, facebook, ema

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The Spoon Theory featured in the

The Spoon Theory featured in the “Ask Jessica” Column for SLE Foundation

A way long over due thank you is in order to Jessica Rowshandel, director of social services for the SLE Lupus Foundation in NYC. She featured "The Spoon Theory" when answering a question for her bi monthly column "Ask Jessica". The question was about telling family and friends about lupus and havin

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Lupus Terms

May is Lupus Awareness Month! How Will You Spread Awareness? I used to get more confused and upset by the words surrounding this disease then Lupus itself. Hopefully the following list of terms will help you. These terms that are generally associated with the symptoms, diagnosis, and treatment of l

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Benlysta Was Approved And Hope Was Born - A Lupus Patient's Perspective

Benlysta Was Approved And Hope Was Born – A Lupus Patient’s Perspective

March 9, 2011 – I will remember this day, Benlysta was approved and hope was born. I will never forget the day I was diagnosed with Lupus. That was 18 years ago, and I am now 33. For those of you doing the math, that means I have had Lupus over half my life. Right now Lupus is incurable, so I exp

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We're All In This Together.... My Experience Meeting Christine and Other Spoonies at the LFA NC Lupus Summit

We’re All In This Together…. My Experience Meeting Christine and Other Spoonies at the LFA NC Lupus Summit

I’ll admit it…..I almost backed out at the last minute.  I had been planning on attending the LFA NC Lupus Summit for some time now and had visions in my head of overwhelming knowledge and epiphanies coming my way.  I dreamed of finally being in a room filled with people who didn’t ask me ho

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When Your Mother Has Lupus: A Daughter’s Perspective

When Your Mother Has Lupus: A Daughter’s Perspective

Being a daughter of a Lupus patient is a unique way to grow up.  I do not have the disease myself, but experienced many of its effects through my mother.  She was diagnosed when I was a year old, and lived with Lupus until last June when she passed away.  I was twenty-two years old when she died,

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Lady Gaga Needs Better Lupus Information!

Lady Gaga graces the cover of the newest issue of Rolling Stone magazine, and inside she gives a candid interview full of her thoughts on topics like gays in the military, her much-anticipated new album and how she plans to battle lupus, a disease in which she tested "borderline positive." Insid

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Confessions of an Unapologetic High-Maintenance

Confessions of an Unapologetic High-Maintenance “Spoonie”

I am unapologetically, standing proudly on my perfectly pedicured toes proclaiming that I am high maintenance. Where exactly is it written that just because I have Lupus, I have to accept the life of a bag lady? Over and over I hear the same thing from doctors, friends, strangers, facebook friends,

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