When the word “crutches” comes up in any of my many orthopedic appointments, it usually sends me away screaming. The horror of constant muscle soreness and cramps from gripping the rather uncomfortable handles that came with my standard crutches send a shudder down my spine. Ok, It’s really no
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I am a competitive person by nature. It isn’t limited to fundraising or professional performance…I’m even competitive with myself. “It took me 15 minutes to blow dry my hair yesterday? I bet I could do it in 10 today!” It’s just the way I’m hardwired. So when I started setting up the a
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The list below are toll free phone numbers for health information (US, unless stated otherwise). This alphabetical list might help you in your quest for more disease specific medical information. 1-800-Toll Free Numbers for Health Information Al-Anon/Alateen World Service Office Headquarters,
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Helpful Medical Abbreviations On the message boards, our Facebook Fan Page, reading our main site/ online magazine, or in day to day conversations, you may find that people use many abbreviations when talking about a diagnosis, a medication or other phrases. This alphabetical list might help yo
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When one hears Kama Sutra Massage oil, one might think of hot monkey love. Not me. I think ahh soft hands and feet and relief to my reptilian scaly dry skin. I have Scleroderma and my most severe symptom since 1992 had been Raynaud's. Raynaud's causes the sympathetic nerves surrounding blood vess
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May is Lupus Awareness Month! How Will You Spread Awareness? I used to get more confused and upset by the words surrounding this disease then Lupus itself. Hopefully the following list of terms will help you. These terms that are generally associated with the symptoms, diagnosis, and treatment of l
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So, are you looking to let your Spoonie flag fly? Are you looking for a way to advertise your Spoonie-ness, or are you just looking for an elegant way to quietly remind yourself that you’re a Spoonie while still looking fabulous? Or better yet, are you a supporter of a Spoonie and you want to give
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I used to wish that I knew someone that was both famous and a Lupus patient so that they could shine a spotlight on Lupus Awareness in a way that I cannot. On Tuesday May 3rd, Toni Braxton will show her true strength and courage on an all new “Braxton Family Values” , as she reveals to her fam
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I became a baseball fan a few years before my endometriosis diagnosis. I’m very glad I became one, because the countless hours spent in bed or on the couch produce much boredom, and baseball provides excitement, passion and also something other than my health to talk to friends and family about. T
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“You are going to stick what where and then put electricity through it to help my pain levels?” was my first reaction to a tens unit when used during physical therapy. The idea of putting patches with electrodes on my shoulder or any where on my body and then running electricity through it for f
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
