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Giving Back Would Be the Best Christmas Gift of All

Giving Back Would Be the Best Christmas Gift of All

Last week, my husband Frank, our daughter Olivia, and I started getting out our holiday decorations. We were very excited to celebrate, because last year, lupus quite simply stole our holiday. We were determined that this year was going to be different. We decided to play Christmas music, dance and

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Lost in the Land of the Undiagnosed

Lost in the Land of the Undiagnosed

Sometimes I feel lost. Lost behind the world of the diagnosed. There are no fundraisers for me. No walks, no T-shirts, bracelets or ribbons. I am the lost within the lost. Aren't we all in some respect? Trapped by our bodies and lost to the world. A Spoonie KNOWS what it feels like to cry in that

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A Time To Give Thanks

A Time To Give Thanks

This is the time of year that inspires us to examine our lives with a closer look and make a checklist of what we are truly thankful for. No matter what your religion or your background, Thanksgiving has become a national holiday where we are reminded to take an inventory of the many blessings we of

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A Time To Give Thanks

A Time To Give Thanks

This is the time of year that inspires us to examine our lives with a closer look and make a checklist of what we are truly thankful for. No matter what your religion or your background, Thanksgiving has become a national holiday where we are reminded to take an inventory of the many blessings we of

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“Sick Humor” You know you’re a Spoonie when….. *Facebook Fan Page Edition*

 Thank you to the butyoudontlooksick.com facebook fan page community for helping come up with some of these great 1- liners! If you do not know what a "spoonie" is, please take a moment to read "The Spoon Theory". “You know you're a spoonie when going to PT and the grocery store in one day is to

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Another Product Recall? Ugh. Children’s Benadryl

Even though this is a children's product, I wanted to list it here for 2 reasons. 1. Many of our readers are parents and could use the info. 2. This is just another reminder to stay "in the know" about your medications, side effects, and yes even over the counter meds, or vitamins. Here is the re

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Historic and Hopeful Day for Patients living with Lupus - FDA Advisory Committee’s Recommendation to Approve Benlysta for Lupus

Historic and Hopeful Day for Patients living with Lupus – FDA Advisory Committee’s Recommendation to Approve Benlysta for Lupus

The U.S. FDA Arthritis Advisory Committee voted 13 to 2 to recommend approvalof the treatment developed by Human Genome Sciences (HGS) and GlaxoSmithKline Tuesday, November 16, 2010 The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations are pleased wit

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Historic and Hopeful Day for Patients living with Lupus - FDA Advisory Committee’s Recommendation to Approve Benlysta for Lupus

Historic and Hopeful Day for Patients living with Lupus – FDA Advisory Committee’s Recommendation to Approve Benlysta for Lupus

The U.S. FDA Arthritis Advisory Committee voted 13 to 2 to recommend approvalof the treatment developed by Human Genome Sciences (HGS) and GlaxoSmithKline Tuesday, November 16, 2010 The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations are pleased wit

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Autoimmune Fatigue….Tips To Cope When You’re Tired

Overwhelming fatigue….just the phrase itself sends sufferers of autoimmune disorders into a chorus of affirmative head nods.  Whether the fatigue stems from Lupus, MS, Rheumatoid Arthritis, Fibromyalgia or Chronic Fatigue Syndrome itself, the debilitating feeling of completely “running out of s

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On November 7th Don’t forget to set your clocks BACK 1 hour and check yourself too!

Hi Everyone, If you are anything like me you forget things easily. So I started a habit when twice a year on daylight savings day, not only do I use the time to obviously set our clocks back one hour. But I use this as a reminder for a "1 hour" check of myself, and my home etc. too. Only spe

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