These are our articles.

Keeping Passover Tradition While Managing Lupus

Keeping Passover Tradition While Managing Lupus

As a Lupus patient, the Jewish holiday of Passover (which this year starts on the night of April 18) is one that resonates with me. It is the holiday that retells the biblical story of Exodus where the Jewish slaves overthrew the Egyptian pharaoh. Moses led the Jews on a journey through the desert t

[ 8 comments ] | [ read more ]

My Social Media Selves

My Social Media Selves

It was the best of times, it was the worst of times. Well, it was probably more of the worst part. In fact, the best of times hardly seems like a qualified way to describe my day to day existence. Ok, and if you want to get technical, I totally just ripped that off from a classic novel, but the famo

[ 19 comments ] | [ read more ]

Sick Humor:

Sick Humor: “Spoonie and the City”

One thing you should know about me is that I LOVE Sex and the City. When it was on HBO, I watched it religiously. I saw both of the movies on opening weekend, of course. I own all of the DVDs. And now that the reruns are on E!, my household stops at 8pm EST week nights. Don’t call me during that h

[ 7 comments ] | [ read more ]

Paying People To Stay Home

Paying People To Stay Home

We don’t appear sick enough and I hear many complain about paying people to stay home.  That $1037.00 I receive in disability benefits has been a dream of mine since I was 15, when I got my first paycheck from Taco Bell and saw my deduction for Medicare and disability benefits.  Yes, this girl f

[ 56 comments ] | [ read more ]

April Fools’…..sort of.

Ever feel like sometimes things slip through your fingers even before you knew you had them in your hands? As professionals, moms, dads, patients, students and perpetually busy human beings, we all forget things from time to time that we swore we'd remember. Your illustrious Spoonie Staff is no e

[ 13 comments ] | [ read more ]

The Bright Side

The Bright Side

I am a pessimist by trade. I’ve tried to change it, but I was born wired this way. I always see the glass half empty. I am always waiting for the other proverbial shoe to drop. So when I consider my illnesses, I am usually thinking negatively. I am usually looking at the downsides. But really,

[ 8 comments ] | [ read more ]

The Plan

The Plan

When I was younger, I really wasn’t sure that there was a plan for my life. Years ago, I had been in a horribly abusive marriage for six years. I tolerated things that are shocking to most people that I tell. During that time and even after it ended, it was the lowest period of my life. I wasn’t

[ 18 comments ] | [ read more ]

The Professional Patient Safety Tips

The Professional Patient Safety Tips

National Patient Safety Awareness Week was observed the beginning of this month. So, in the spirit of that week, here are 10 tips for keeping yourself safe with living with health conditions and being in and out of clinics and the medical systems. 1. Keep an up to date list of medications. Bring

[ 9 comments ] | [ read more ]

When You're Not Sick Enough

When You’re Not Sick Enough

Before I even get started with this article, let me state for the record, that for those who have been approved for short or long term disability, you deserve it. You’ve suffered just as much, if not more than any of the rest of us and I do not begrudge you a thing. In fact, I understand that it�

[ 486 comments ] | [ read more ]

5 Tech Features To Make Life Easier

5 Tech Features To Make Life Easier

1. PC Sticky Notes – I keep a relatively icon and uncluttered desktop with one exception: PC Sticky Notes which came with Windows 7. On my ipad, I use Infinote. These come in handy to keep track of appointments, write down book titles or website names, homework assignment, to do lists, or random n

[ 12 comments ] | [ read more ]