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It's All Greek To Some

It’s All Greek To Some

Recently, I needed some physical therapy. I had a torn core muscle, nothing too serious. The Physical Therapist asked me, “So, you’re young and healthy, right?” Um, NO. I handed him my large excel spreadsheet that I have with me at all times listing my medications, conditions, hospitalization

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Poetry: Pieces of Us

Poetry: Pieces of Us

To be separated Body and mind Split between thoughts of love And questions for the enemy Yet they both reside In the same body In my body There are no answers Just community A family of people like myself Found here Yet spread all around the world Provide strength

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I'm Thankful He Doesn't

I’m Thankful He Doesn’t “Get It”

“Your cells react to bacteria and viruses differently than mine. You don't get sick, I do. That's also clear…We're on the same curve, just on opposite ends.” Elijah Price, “Unbreakable.” I want to introduce you to my brother Justin. He’s three years younger than me; same parents, same

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Lupus Terms

May is Lupus Awareness Month! How Will You Spread Awareness? I used to get more confused and upset by the words surrounding this disease then Lupus itself. Hopefully the following list of terms will help you. These terms that are generally associated with the symptoms, diagnosis, and treatment of l

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Walking To A Place Where I Belonged

Walking To A Place Where I Belonged

How can a simple walk make me find a place where I fit, where I’m not looked down upon for the team of medical specialists I have on board or the number of ailments I battle?  It surprised even myself as I thought I wouldn’t be able to find that community outside of the “box” but found it I

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When Your Caregiver Is Also Your Significant Other

When Your Caregiver Is Also Your Significant Other

With most couples in a long-term love relationship, whether or not they are married, the phrase "in sickness and in health" conjures up images of short-lived ailments like the flu, or perhaps helping each other in old age after multiple healthy decades together. Not many anticipate or have any g

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Survival Guidelines For Taking Your Kids To Your Doctor Appointments

Survival Guidelines For Taking Your Kids To Your Doctor Appointments

If you’re a spoonie you know that our lives are often times filled with more doctors’ appointments than we’d like. If you’re a mother you know that dragging kids to those war zones appointments can be more daunting than hiking to the bottom of the Grand Canyon, and equally as challenging as

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Poetry: I Didn't Know...

Poetry: I Didn’t Know…

I didn't know back then that life would change forever. I didn't know what pain was then. I didn't know the sacrifices and allowances I would end up making. I didn't know my hair could hurt. I didn't know that I would have to give up the things that brought me the most joy because I just couldn't do

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April is Counseling Awareness Month

Many people believe that counseling is the same as psychiatry, clinical psychology, and/or social work. Counseling is different since it works with individuals or groups that are dealing with situational or long term issues. Counselors deal with a myriad of issues such as depression, trauma, eating

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April is Autism Awareness Month

Autism is a developmental disability that affects a person’s ability to communicate and interact with others. There are varying degrees to which each individual is affected and certain behaviors that define the disability. The Center for Disease Control and Prevention issued their ADDM autism prev

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