“No! No! No! Yesssss!” Unfortunately, I am not reviewing an "adult" toy (Hey Christine and Steph, can I do a product review of an "adult" toy for BYDLS?) I am talking about why I love Hylunia products. The line has no preservatives, no parabens and no lanolin, which makes it a big yes for me!
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Grab the kids, Bring your friends, and enjoy the day by the bay! Blues on the Bay for Lupus, Sunday, July 31st at the Long Island Maritime Museum in Sayville. 86 West Avenue, West Sayville, NY *This is a rain or shine event. It was so much fun last year to meet a few new "lupus friend
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I spoke on June 16th at the #140conf in NYC with Amanda Greene, Brenda Blackmon, and Kelly Dawn. Our panel was called "the lupus ladies of twitter". We spoke about how social media has not only brought us together as a panel from across the country, but about how social media (twitter, facebook, ema
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Come celebrate my birthday in NYC! We are bringing together family, friends, "spoonies", and some new online friends to have a special night for a great cause! Wednesday July 20th from 6:30- 9pm at the RS Pop Shop -Roger Smith Hotel in NYC we have planned the perfect happy hour... a ton of fun w
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We have forgotten how to laugh. There. I said it. Not that I can blame a single one of us. Let’s face it, when you wake up, throw your leg off the bed and hear it echo in the room like a creaking door in a 1950’s horror flick, the giggle factor isn’t really at an all time high. I don’t th
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A way long over due thank you is in order to Jessica Rowshandel, director of social services for the SLE Lupus Foundation in NYC. She featured "The Spoon Theory" when answering a question for her bi monthly column "Ask Jessica". The question was about telling family and friends about lupus and havin
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I am a competitive person by nature. It isn’t limited to fundraising or professional performance…I’m even competitive with myself. “It took me 15 minutes to blow dry my hair yesterday? I bet I could do it in 10 today!” It’s just the way I’m hardwired. So when I started setting up the a
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May is Lupus Awareness Month! How Will You Spread Awareness? I used to get more confused and upset by the words surrounding this disease then Lupus itself. Hopefully the following list of terms will help you. These terms that are generally associated with the symptoms, diagnosis, and treatment of l
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I used to wish that I knew someone that was both famous and a Lupus patient so that they could shine a spotlight on Lupus Awareness in a way that I cannot. On Tuesday May 3rd, Toni Braxton will show her true strength and courage on an all new “Braxton Family Values” , as she reveals to her fam
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Benlysta is the first new drug approved for Lupus in 50 years. It's not for everyone with Lupus, but for those who can benefit, that's awesome! Now, I know some are thinking, I don't have Lupus, why should I care about Benlysta? You don't have Lupus - why are you writing an article about Benlysta. W
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
