Are you on Linkedin.com?

HI! You know me... I love to be connected. Are you on Linkedin.com ? Please feel free to add me: http://www.linkedin.com/in/bydls If we have worked together... or just because you like me ;) Please write a recommendation if you feel compelled to. Thanks!

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If you are on Twitter…

Add me! I am @bydls Thank you! Sometimes I wonder if I can reach 2,000 followers? I am so close! :) Can you RT, or ask your friends to follow? we can do it!   Remember to add the hastag #spoonie to connect with other people from bydls!

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Manny’s Spoon Presentation

I often receive requests to reprint The Spoon Theory in educational material, support group hand-outs, and health related newsletters. Recently, one request really grabbed my attention. A group of friends decided to honor a co-worker, recently diagnosed with cancer, by presenting him with a printed

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Quick note about “adding me as a friend” on facebook

HI Guys, I love that so many of you want to add me on facebook as one of your friends. It is great being so connected with the BYDLS community. It is hard to know if you are adding me because of this or because you are a spoonie, unless you add a little note with your add request. I will be sure to

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June 9, 2010 is World Antiphospholipid Antibody Syndrome (APS) Day

June 9, 2010 is World APS Day. We'd like to help bring more attention & awareness to this "rare" autoimmune disease. What is Antiphospholipid Antibody Syndrome (APS)? APS is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis

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Did you watch Lady Gaga on CNN with Larry King?

Lady Gaga was on Larry King Tonight 9pm est. I just finished watching it, and of course I am on my computer typing away my response and will have a blog post up shortly. But I wanted to know your thoughts about what she said about lupus? Do you think this is a good or bad thing for the lupus communi

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Lupus Alliance responds to rumors of Lupus and Lady GaGa

ButYouDontLookSick.com works closely at times with the Lupus Alliance. We respect when organizations like The Alliance react quickly and respectfully. "May is lupus awareness month, and once again another celebrity has put lupus front and center in the news. Lady Gaga announced recently that she

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Did You Know.. World MS Day is May 26th, 2010

Did You Know.. World MS Day is May 26th, 2010

World MS Day is May 26th, 2010 Join the Global Movement. End MS! Take action on World MS Day. Think globally. Act locally. More than two million people across the world and more than 400,000 in the United States are living with MS. Join with 100 MS organizations around the globe for the 2nd An

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May 19th is World IBD Day

May 19th is World IBD Day. This is the international day to recognise the need for awareness and support of those living with Crohn's disease and ulcerative colitis. There are more than 5 million people in the world living with IBD, there is no cure, no known cause, and little public understanding o

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Press Release: ButYouDontLookSick.com now featuring Product Reviews for those dealing with Chronic Illness or Disability

Butyoudontlooksick.com is a online magazine designed to supply information, resources and support to those with any chronic and often invisible illness. It was begun five years ago by Christine Miserandino, a Lupus patient and someone who understands the need for this website first hand. In addition

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