Poetry: You are no friend

a poem submitted by one of our members. You distort the being that was once within me Coming in and out of my days Draining, Staining, Forever released of you, I wish to be How demented your fury Evermore cursing my life with this agony Torturing, Suffering, This makes all that remains dreary Atta

[ no comments ] | [ read more ]

Poetry: Sleepless Nights

A poem submitted by one of our members. Sleepless Nights As I lay in the dark thinking Of all those sleepless nights past I wonder what the point is Of this nightmare I call life Each night the same routine Starts with turning out the light And laying in the dark Staring into the abyss This time I

[ one comment ] | [ read more ]

Poetry: No More Spoons

One of our members submitted this poem. I am nearing the end of my tether My spoons have nearly run out I need a close friend In whom I can depend And talk through my feelings of doubt. It’s so hard to say how I’m feeling To express all the thoughts that I hide If you don’t really feel That

[ 2 comments ] | [ read more ]

Poetry: Through the Eyes of a Mother

A poem about my mother witnessing my disability as it progresses. Born "normal" and strong Beneath the harmonious melody, lies a discordant song It lies in wait to strike a river about to break its dike Everyone thought "what a blessing!" unseen wounds under a dressing Walked at seven months of ag

[ no comments ] | [ read more ]

Poetry: Alone At Night

Now I lay me down to go to sleep. Away from prying eyes, I often weep. I do not let others see my worries or my tears. No one needs to know about my true pains or fears. I want to be seen for my strengths and not my weaknesses. For my greatest fears I want no witnesses. At night, I lie alone in th

[ one comment ] | [ read more ]

Poetry: Friend to Lean On

We all need a friend to lean on. I am glad we met. I know I found a great friendship in you. You are very special to me. I hope you understand and see. It does not matter what our relationship is, I will always remain your friend. Just being able to talk with you and be your friend is thanks enoug

[ 2 comments ] | [ read more ]

Poetry: Wish I could…

By Nicole Hester-Francis For Steven a Lupus survivor Tell you how much you mean to me The joy the sadness the endless nights we share talking Lonely feelings—thoughts of the end you wouldn’t let be Just being yourself…I wish I could…… Covert lives we both are livin’ Masking the pain Th

[ one comment ] | [ read more ]

Poetry: You Look Great!

You look great! Oh no, not this again You look healthy Please, don’t you understand? Wow, how much are you exercising? You have no idea How do you make others understand? We look normal We have spirit We care We love life We have dreams We love solutions But, the truth is We struggle every day W

[ no comments ] | [ read more ]

Poetry: Being

I wrote this poem when I was going through a really hard time physically. Shortly after writing this I was diagnosed with fibromyalgia on top of the Ehlers Danlos Syndrome I already had. This was a way for me to express how I felt at that time. Being Eyes glazed over, She fades into the crowd, S

[ no comments ] | [ read more ]

Poetry: Borrowed Time

We all use borrowed time Each day we awake Each step we take Each sound we hear Each taste Each laugh Each touch It’s all on borrowed time We need to remember that each of these is a gift We need to treasure what we have been given We need to find the good in our moments traveling through life F

[ no comments ] | [ read more ]