A Spoonie Meltdown

A Spoonie Meltdown

We interrupt your regularly scheduled program to bring you this Spoonie Meltdown. Last week started like any other week. Well, that might be overstating it. I had been on vacation. I came back Monday to an already overfull work week and hundreds of emails to respond to from the days out. I also had

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Keeping Passover Tradition While Managing Lupus

Keeping Passover Tradition While Managing Lupus

As a Lupus patient, the Jewish holiday of Passover (which this year starts on the night of April 18) is one that resonates with me. It is the holiday that retells the biblical story of Exodus where the Jewish slaves overthrew the Egyptian pharaoh. Moses led the Jews on a journey through the desert t

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My Social Media Selves

My Social Media Selves

It was the best of times, it was the worst of times. Well, it was probably more of the worst part. In fact, the best of times hardly seems like a qualified way to describe my day to day existence. Ok, and if you want to get technical, I totally just ripped that off from a classic novel, but the famo

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Paying People To Stay Home

Paying People To Stay Home

We don’t appear sick enough and I hear many complain about paying people to stay home.  That $1037.00 I receive in disability benefits has been a dream of mine since I was 15, when I got my first paycheck from Taco Bell and saw my deduction for Medicare and disability benefits.  Yes, this girl f

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The Bright Side

The Bright Side

I am a pessimist by trade. I’ve tried to change it, but I was born wired this way. I always see the glass half empty. I am always waiting for the other proverbial shoe to drop. So when I consider my illnesses, I am usually thinking negatively. I am usually looking at the downsides. But really,

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The Plan

The Plan

When I was younger, I really wasn’t sure that there was a plan for my life. Years ago, I had been in a horribly abusive marriage for six years. I tolerated things that are shocking to most people that I tell. During that time and even after it ended, it was the lowest period of my life. I wasn’t

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When You're Not Sick Enough

When You’re Not Sick Enough

Before I even get started with this article, let me state for the record, that for those who have been approved for short or long term disability, you deserve it. You’ve suffered just as much, if not more than any of the rest of us and I do not begrudge you a thing. In fact, I understand that it�

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“Nice To Meet You…I’m the Sick Girl”

I feel as though I spend all of my time trying to get my spoonie-self heard. I wear my spoon pin to work- every day. I remind friends, family, co-workers about treatments and such. On the days when I call in sick to work or cancel a social function, I remind these people what I am dealing with. You

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Losing the Battle...But Winning the War

Losing the Battle…But Winning the War

“You ever had one of those wars where everything goes wrong?” Hawkeye, M*A*S*H From the earliest history classes, we’re taught how it’s very hard to win a war fought on two fronts. You can easily be overtaken. If you start to ignore one front to concentrate on the other, you’re going to

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The Luck of the Spoonies

The Luck of the Spoonies

Today was a lupus day. You know the ones that hit you like a ton of bricks the moment you wake up? You realize that your busy-for-a-spoonie-but-not-for-a-normal-person day yesterday has left you in a serious deficit today. Yeah…today was that day. And then I had to play “Mom” to my two youn

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