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Did You Know.. World MS Day is May 26th, 2010

Did You Know.. World MS Day is May 26th, 2010

World MS Day is May 26th, 2010 Join the Global Movement. End MS! Take action on World MS Day. Think globally. Act locally. More than two million people across the world and more than 400,000 in the United States are living with MS. Join with 100 MS organizations around the globe for the 2nd An

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Simple acronyms for those in NA, AA or other 12 step program

Simple acronyms for those in NA, AA or other 12 step program

For those in NA, AA or any other 12 step program, these simple acronyms can be helpful when you need a reminder to "stay the course". If you have any more to add, please feel free to comment on this article. AA Achieving Adulthood ACTION Any Change To Improve Our Nature BIG BOOK Believ

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“Vanity” a poem by Shanelle Gabriel

I found this video on youtube last night. (Yes, I couldn't sleep again) But I feel that maybe I was meant to find this video and share it with all of you. The video shows a performance of live poetry by Shanelle Gabriel from Brooklyn, NY. Not only did I identify completely with her words and experie

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May 19th is World IBD Day

May 19th is World IBD Day. This is the international day to recognise the need for awareness and support of those living with Crohn's disease and ulcerative colitis. There are more than 5 million people in the world living with IBD, there is no cure, no known cause, and little public understanding o

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A Balancing Act: how I’m managing the daily currency of Spoons

A Balancing Act: how I’m managing the daily currency of Spoons

Living with a chronic illness can be like walking a tightrope. I live with Fibromyalgia, Irritable Bowel Syndrome and a depressive disorder. In order to best manage my Fibromyalgia, it’s vital that I carefully pace myself. Too much leads to burn out, but too little activity can also worsen my s

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Press Release: ButYouDontLookSick.com now featuring Product Reviews for those dealing with Chronic Illness or Disability

Butyoudontlooksick.com is a online magazine designed to supply information, resources and support to those with any chronic and often invisible illness. It was begun five years ago by Christine Miserandino, a Lupus patient and someone who understands the need for this website first hand. In addition

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Lupus - A Mother's View

Lupus – A Mother’s View

IN Honor of Mother's Day in the US, my mother wrote this article about being a mom of a child with Lupus. My daughter Christine has had Lupus, with the accompanying vast array of symptoms, since she was 15 years old. During college, in her attempt to explain her illness, she wrote about Lup

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Sick Humor: You know you have Lupus or (an Invisible Disease) when…(Part 2)

(This funny list was written by the members of our message boards It made me laugh, and I wanted to share it with all of you) Your mother-in-law calls to ask you to tape her soaps and you agree. Your husband then tells you, "We don't have a VCR", then you say, "Yes we do, in the bedroom beside

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Lupus in the Media: Television Shows, Movies and More Where Lupus Was Featured or Part of the Character or Storyline

Lupus in the Media: Television Shows, Movies and More Where Lupus Was Featured or Part of the Character or Storyline

Even after House, M.D.has mentioned the word Lupus in almost every episode of the television show, Lupus is still not a well known disease. I know a little part of me jumped up and got all excited when I heard the word Lupus on TV the first time. I will never forget the moment. I thought that maybe

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Travel Tips to Make Your Trip to Disney Easier with a Chronic Illness or Disability

Travel Tips to Make Your Trip to Disney Easier with a Chronic Illness or Disability

As I sit down to write this I wondered if I really am an “expert” in this subject and after much thought I realized I may not have all the answers, but I have a lot.  I am a mom with two boys 8 & 15 and have traveled from Seattle to Disneyland (DLR) more than 50 times in the last 10 years,

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