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Human Connections: Connect with Others to Connect with Yourself

Human Connections: Connect with Others to Connect with Yourself

In order to lead a healthy, well balanced life, it is important to have some special people in your life. This makes you feel connected, loved, cared for and valued. We all need human connections to thrive and also to be the best we can be in this world. There are many qualities that make up a good

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Quick note about “adding me as a friend” on facebook

HI Guys, I love that so many of you want to add me on facebook as one of your friends. It is great being so connected with the BYDLS community. It is hard to know if you are adding me because of this or because you are a spoonie, unless you add a little note with your add request. I will be sure to

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Handicap Parking and My Invisible Illness

Handicap Parking and My Invisible Illness

I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a cane, but most of the times I don’t need it. I have a handicapped parking tag hanging on the mirror of my car. I park in handicapped spots. However, I get nasty looks when I get

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June 9, 2010 is World Antiphospholipid Antibody Syndrome (APS) Day

June 9, 2010 is World APS Day. We'd like to help bring more attention & awareness to this "rare" autoimmune disease. What is Antiphospholipid Antibody Syndrome (APS)? APS is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis

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What is Lupus? Lupus Definition

What is Lupus? Lupus Definition

With Everyone Asking "What is Lupus?" Lately.... Here is a Simple Lupus Definition Lupus is a chronic inflammatory disease that can affect various parts of the body, especially the skin, joints, blood, and kidneys. The body's immune system normally makes proteins called antibodies to protect th

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Dear Lady Gaga: a Love Letter from a Lupus Patient

Dear Lady Gaga: a Love Letter from a Lupus Patient

Dear Lady Gaga, I just finished watching your interview with Larry King on CNN. If you knew me, you would know that running to the computer and vocalizing my thoughts to family, friends and even to you is nothing unusual! I have chosen to step up and “out” (so to speak) about my life with Lup

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Did you watch Lady Gaga on CNN with Larry King?

Lady Gaga was on Larry King Tonight 9pm est. I just finished watching it, and of course I am on my computer typing away my response and will have a blog post up shortly. But I wanted to know your thoughts about what she said about lupus? Do you think this is a good or bad thing for the lupus communi

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Wil Wheaton and John Scalzi are holding a fan-fiction contest to benefit the Lupus Alliance of America.

Wil Wheaton and John Scalzi are holding a fan-fiction contest to benefit the Lupus Alliance of America.

 This contest is super easy and proceeds will go to a great cause! Simply explain the picture, win the contest, get paid, and help people! I must say the picture is pretty crazy! INFO: For the benefit of the Lupus Alliance of America, John Scalzi, Wil Wheaton and Subterranean Press are runnin

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Lupus Alliance responds to rumors of Lupus and Lady GaGa

ButYouDontLookSick.com works closely at times with the Lupus Alliance. We respect when organizations like The Alliance react quickly and respectfully. "May is lupus awareness month, and once again another celebrity has put lupus front and center in the news. Lady Gaga announced recently that she

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“Professional Patient” Tip: In Order to Use It, You Need to Own It.

How many times have I woke up and decided that today is the day that I am going to start off on the right foot and wear sun block. Although I wake up with the best of intentions, I soon learn the seemingly obvious lesson that "if you don't own it, you can't use it". I start off by looking through my

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