These are our articles.

Sick Humor:

Sick Humor: “It’s Always Darkest Before The Dawn”…..And Other Useless Crap.

Albert Einstein was quoted as saying “Two things are infinite; the universe and human stupidity…and I’m not sure about the universe.”  Well, Mr. Einstein, while I think your hairstylist apparently went to the Cosmo Kramer School of Coif Design, you may have hit the nail on the proverbial he

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Fast Company is searching for 2010’s Most Influential Person Online

This will be fun!  All you have to do is click the link and it helps me show how large the butyoudontlooksick.com network is!  It will be amazing, but we need your help! Please click link to help me with this project! Let's see how many #spoonies we can pull together! http://fcinf.com/v/aoa8 Fa

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Reading “A Daughter’s Perspective” and wondering about my own daughter…

I just published an amazing article written by a guest writer Rebecca Geraghty. I must admit, that after doing my last read of the article, I am crying. I am 32 and my daughter will be 3 very soon. I wonder if my daughter will have the same thoughts of the author? I wonder what she will grow to know

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When Your Mother Has Lupus: A Daughter’s Perspective

When Your Mother Has Lupus: A Daughter’s Perspective

Being a daughter of a Lupus patient is a unique way to grow up.  I do not have the disease myself, but experienced many of its effects through my mother.  She was diagnosed when I was a year old, and lived with Lupus until last June when she passed away.  I was twenty-two years old when she died,

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The Lupus Taxpayer Gifts Bill needs your help!

Wonderful News! The Lupus Taxpayer Gifts Bill, which will allow Lupus to be one of the charity choices taxpayers can donate to on their NYS Tax return, passed unanimously in the NYS Senate late last week! Thank you to everyone who took the time to write letters and call their representatives to

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Lady Gaga Needs Better Lupus Information!

Lady Gaga graces the cover of the newest issue of Rolling Stone magazine, and inside she gives a candid interview full of her thoughts on topics like gays in the military, her much-anticipated new album and how she plans to battle lupus, a disease in which she tested "borderline positive." Insid

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Confessions of an Unapologetic High-Maintenance

Confessions of an Unapologetic High-Maintenance “Spoonie”

I am unapologetically, standing proudly on my perfectly pedicured toes proclaiming that I am high maintenance. Where exactly is it written that just because I have Lupus, I have to accept the life of a bag lady? Over and over I hear the same thing from doctors, friends, strangers, facebook friends,

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Are you on Linkedin.com?

HI! You know me... I love to be connected. Are you on Linkedin.com ? Please feel free to add me: http://www.linkedin.com/in/bydls If we have worked together... or just because you like me ;) Please write a recommendation if you feel compelled to. Thanks!

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If you are on Twitter…

Add me! I am @bydls Thank you! Sometimes I wonder if I can reach 2,000 followers? I am so close! :) Can you RT, or ask your friends to follow? we can do it!   Remember to add the hastag #spoonie to connect with other people from bydls!

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Manny’s Spoon Presentation

I often receive requests to reprint The Spoon Theory in educational material, support group hand-outs, and health related newsletters. Recently, one request really grabbed my attention. A group of friends decided to honor a co-worker, recently diagnosed with cancer, by presenting him with a printed

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