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Let Your Voice Be Heard: National Chronic Illness Awareness Week

National Invisible Chronic Illness Awareness Week starts in just a couple of weeks, Sept 13-19, 2010.  Despite the fact that the majority of the US population looks rather healthy, statistics show a different story. Nearly 1 in 2 people have a chronic condition. This could be an illness like can

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For the Men: September Is National Prostate Cancer Awareness Month

As the month of September brings prostate cancer into focus, it’s time to increase public understanding of the disease, including its prevalence, approaches to screening and prevention, treatment options, and resources that offer updated prostate cancer information throughout the year. Prostate

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FDA Priority Review Designation for BENLYSTA® First Drug for Lupus in 50 years

FDA Priority Review Designation for BENLYSTA® First Drug for Lupus in 50 years

ROCKVILLE, Md.--(EON: Enhanced Online News)--Human Genome Sciences, Inc. (Nasdaq:HGSI) and GlaxoSmithKline PLC (GSK) today announced that the U.S. Food and Drug Administration (FDA) has granted a priority review designation to BENLYSTA® (belimumab) as a potential treatment for systemic lupus er

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Sick Humor: A Spoonie Anthem

Sick Humor: A Spoonie Anthem

It’s Sunday.  To most people that means possibly a trip to church and then a lazy day with their family.  It means that they start dreading the impending arrival of Monday and the start of a new work week.  Oh, to have a day like that….what I wouldn’t give.  My Sunday is known around my ho

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National Women’s Equality Day – You Go Girl!

In 1971 the U.S. Congress designated August 26 as “Women’s Equality Day.” The date was selected to commemorate the 1920 passage of the 19th Amendment to the Constitution, granting women the right to vote. The government finally gave women the right to have their voices heard.  Not only is

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Truly Amazing and Humbling….

I am happy to announce that the butyoudontlooksick.com facebook fan page has OVER 18,000 fans! I can not even type, or say that number without being amazed, thrilled, happy and humble. Thank you to everyonewho has "liked" our page and then, shared this page with their friends! If you are on faceb

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The Best Pen I Have Ever Used!

Yes I said it! The BIC brand XXL pen is the best pen I have ever used! I always like to share good things I find with you and this is certainly one of them! Having Lupus and carpel tunnel causes me great pain when I write, but as you know... I am a writer. You might think that I type since you ar

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Diamonds, Capes and Spoons……YOU are a superhero too.

Diamonds, Capes and Spoons……YOU are a superhero too.

It wasn’t long ago when I heard Rob Thomas’ song “Her Diamonds” for the first time.  It was in the car after frantically changing the channel from a Disney star that shall not be named *coughmileycyruscough* much to the objection of my two Hannah Montana obsessed pre-teens in the back seat.

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Flying: You’ll get there, besides isn’t the journey the point, as much as the destination?

Flying: You’ll get there, besides isn’t the journey the point, as much as the destination?

I recently flew to New Zealand for a few weeks of vacation. My first REAL vacation since I was say 7? I was so excited. I packed up, got all my gear, made sure everything was set. I have been flying alone since I was 15. I knew the drills, even with all the new protocols, I could navigate this hell.

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Thank you to AmericanCatholic.org for featuring “The Spoon Theory”

Thank you to AmericanCatholic.org for mentioning my essay "The Spoon Theory" in My Life With Multiple Sclerosis By Susan Hines-Brigger. We Just became aware of  this article although it was published May 2010. Susan wrote an amazing article about living with MS and some lessons she has learned alon

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