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April is IBS (Irritable Bowel Syndrome) Awareness Month

It’s National IBS month! Not commonly something associated with excitement, I know. But as Irritable Bowel Syndrome (IBS) affects almost all of us with autoimmune related illness (as a comorbid syndrome), it is important that we know as much about it as we can, as well as how to make ourselves com

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I've Learned...

I’ve Learned…

This hasn't been an easy road to travel the past 14 years. There's been a lot of moments I've wished I could get back, a lot that failed to go as planned. I've faced a lot of disappointments and seen a lot in my life change. I've learned that I'm not alone. I've found community and people who can

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Poetry: Tired

Poetry: Tired

I tire of my body. I tire of my pain. I tire of the whirlwind scraping the walls of my skull. I tire of the weeping willow cracking and sprouting within thine eyes. I tire of courage. I tire of strength. I tire of personal earthquakes that make morning coffee a joke! I tire of cramping: calf, thigh,

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Parenting From The Couch

Parenting From The Couch

Lauren Bacall once said “I'm not a sedentary person. I've always been active.” I stumbled upon this quote when tinkering online while my kids played and was something I could relate to back in the day. I say that with a wistful look as I can no longer say I’m that active person. For me I have

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I Support Benlysta....and I Don't Have Lupus

I Support Benlysta….and I Don’t Have Lupus

Benlysta is the first new drug approved for Lupus in 50 years. It's not for everyone with Lupus, but for those who can benefit, that's awesome! Now, I know some are thinking, I don't have Lupus, why should I care about Benlysta? You don't have Lupus - why are you writing an article about Benlysta. W

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The Perfect Spoonie

The Perfect Spoonie

From day one, I have been a perfectionist. I know that when I was in preschool, the teacher told my parents that if I could not cut with those rounded tip scissors on the exact line, then I just wouldn’t do it. And that was only the beginning of my quest for perfection. But that’s a pretty diffi

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Be Prepared. Where is Your Stash?

Be Prepared. Where is Your Stash?

Most of us have them and some of us even forget where they are due to the lovely fog that comes with Fibromyalgia and other conditions! I currently have five different locations that I stash emergency Spoonie supplies. 1. My nightstand is the primary place where I keep all of my medicines. I norm

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A Spoonie Meltdown

A Spoonie Meltdown

We interrupt your regularly scheduled program to bring you this Spoonie Meltdown. Last week started like any other week. Well, that might be overstating it. I had been on vacation. I came back Monday to an already overfull work week and hundreds of emails to respond to from the days out. I also had

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April Awareness: Let's Learn About Sjogren's Syndrome

April Awareness: Let’s Learn About Sjogren’s Syndrome

Every month has awareness about something, sometimes several things. April is no exception. April is the awareness month for Autism, Child Abuse, STD’s, IBS, Parkinson’s, Rosacea, and the list goes on and on. I am going to talk about one that is not often heard of, Sjögren’s Syndrome. Accordi

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April is PIDD Awareness Month

April is Primary Immunodeficiency Awareness Month. Primary Immune Deficiency Diseases (PIDDs) are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. The most famous case is “The Boy in the Bubble” story.  In the US, there are an estimated 250,000

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