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August is National Immunization Awareness Month

August is National Immunization Awareness Month. You never outgrow the need for vaccines. The specific immunizations you need as an adult are determined by factors such as your age, lifestyle, high-risk conditions, type and locations of travel, and previous immunizations. Throughout your adult li

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Nominate a Caregiver for a 2011 Shire Brave Award!

We always like to pass on good stuff when we find it, and what is better then  honoring a great caregiver in your life? The Shire Brave Awards are a new initiative of Shire plc, a global specialty biopharmaceutical company, to acknowledge ordinary people who give of themselves by caring for othe

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I am playing a bit of catch up updating all of you on my summer adventures!

Hi Everyone, I know it may seem like I am posting video, radio, pictures and blog posts from events that happened a bit ago. I have had such a busy summer, some great and some not so great events but all learning experiences that helped me grow. So now that things are a bit calmer, I am taking ti

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July 26th is the 21st Anniversary of the ADA

FYI - July 26th marks the 21st anniversary of the Americans with Disabilities Act. Know your rights: http://www.ada.gov

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Sjogren’s: Hard to Say…Harder To Diagnose

July 23rd is World Sjogren's Day. Since symptoms of Sjögren’s syndrome mimic other conditions and diseases, Sjögren’s can often be overlooked or misdiagnosed. On average, it takes nearly seven years to receive a diagnosis of Sjögren’s syndrome. Patients need to remember to be pro-active in

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Join me TODAY July 20th in NYC for cupcakes, cocktails, shopping and fun for charity Lupus!

 Hi everyone, If you haven't yet made the decision to join me TODAY July 20th Wednesday night for some shopping, cupcakes, cocktails and fun!NOW is the time to do it! Come to the famous RSPop help me celebrate my birthday and the 8th anniversary of ButYouDon'tLookSick.com by raising money for the L

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Walking The Line

Walking The Line

Lines are funny things. You either cross a line or not. The shortest distance between two points is a straight line. They can be sharp or fuzzy and can keep you going on the right path. The wrong line can appear to be the right way but lead you to a dead end or detour. What does all this line talk h

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It's No Big Deal?

It’s No Big Deal?

Lately I’ve been getting the impression from some of my friends that maybe my growing list of chronic illnesses is no big deal. No one is actually coming out and saying these words, but that is definitely the feeling I’m getting. This point could be debatable. Maybe they think that. Maybe I’m

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The Story Behind The Smile, The Outlook Behind The Outfit *Update

The Story Behind The Smile, The Outlook Behind The Outfit *Update

Do you dress to impress or do you dress how you really feel? That quickly became the big question for me yesterday on twitter. What started as a joke between some new friends I made, really had me thinking. I am cheduled to speak at the #140conference in NYC about Lupus, health related support�

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Profile of An Overachieving Spoonie

Profile of An Overachieving Spoonie

My schedule is jam packed with work, assignments, writing, and homework. Occasionally, there's a hair appointment or an actual meal - you know, one where I'm not working or studying, but just eating and maybe conversing. But most of the time, it's all work and no play making this Jane a dull girl. I

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