My dad died on April 1st, 1990 so I don’t celebrate that day any way

Hi-I was so excited to find your site & have mainly just been a reader. I `m from Sydney Australia & yours is the email I look forward to recieving most-I felt like crying with happiness (well,sort of!) to find such a great site-I especially love your “spoons” analogy.I tried to use it to demonstrate to my husband what living with a chronic,invisible illness is but I`m not sure he understood. He has & continues to be my best friend,carer & brilliant father to our two children.I was diagnosed with relapsing/remitting MS at 27 but almost 20 years after diagnosis I fear that my symptoms have been more constant (But still invisible!!) for the last few years. I have been on & off Tysabri since 2008 (one of the newer wonder drugs- or as I tell my neurologist it`s a “wonder” anyone stays on it). I am regularly(read :most of the time) laid low with various infections-have had two stays in hospital due to pneumonia & at present am fighting off some sort of nasty flu hoping it won`t turn into pneumonia. After my daughter was born in 1999 I had gone off all medications & thought I had beaten the post natal 3 month risk for exacerbations-good point to make here is to talk to your Dr & not believe everything you read as I had the worst MS attack & was hospitalised-(there is actually a 12 mth risk of exacerbation after delivery). I was left with a chronic pain problem which was diagnosed as central pain & after the pain clinic roundabout more or less discovered that I just had to live with it. I take slow release morphine but I don`t think it does much except slow me down even more (& put on lots of weight)-I was interested to read about the Tens machine & might give this a try. Unfortunately I also suffer with generalised anxiety disorder & have been recently diagnosed as Bipolar (another invisible illness!-the spending sprees weren`t too invisible) so all up I feel my husband needs a carer so that he can be a carer for me & our two gorgeous children ! The irony of my situation is that I think my mental illness has had a much more significant effect on my life. It`s often very difficult to tease out which is making me feel worse, but I find it so true that only similar sufferers like those I have read about on your site really seem to understand what it`s like to not know how or if you`ll be able to get up every morning let alone function. I know I`ve gone right off the track from the topic of this board but if you saw how many spelling/typo mistakes & thought blanks I`ve had writing this message you would know that I am fully in fog land! I actually think I`m pretty lucky compared to others I hear of & I`ve (nearly) always felt that way. Sorry for the ramble-just really wanted to let you know what an excellent site (& perfect title) I think you`ve created & to let you know how much comfort & many chuckles it has given a very socially isolated(but friendly) spoonie!

Brain Fog Hmmm Oh Yeah I know I Forgot and never started again.

wanted to say something but i forgot…………………

Yeah, like my just typing my URL in for my email and vice versa. Got that sorted out.

I know the feeling. It’s been crazy the past two weeks since I caught a bug on top of all the chronic and have been out of my mind, sort of turned into a slug. I sleep a lot.

Brain fog. What brain fog? Squirel!

lol, brain fog must be traveling across the country!!! Oh look….