The Mommy Diaries, A Letter To My Pre-Teen Daughter

 

It didn’t seem that long ago that I was right there in her Converses, thinking that life would surely end if “that guy” didn’t like me back, or if I didn’t make the cheerleading squad. It’s amazing that when you are a pre-teen, embarking on those formidable years that I found out later my mother referred to as “the decade of the damned”, the smallest most insignificant things make it seem like the world is ending. I remember my fair share of screaming about how not letting me go to that unsupervised party would ruin my life forever and how my parents were just stuck in the 1950’s for not letting me date that guy that picked me up one night by honking the horn and shouting, “Yo…you ready, woman?”

My daughter turns 12 years old today and as I look back on those years, I see a lot of myself in her actions, mannerisms and speech. She’s my little mini-me inside and out, except for the simple fact that she has an innocence about her that I long for. It’s that innocence that makes her believe that the world is conquerable, good always wins over evil and she will always be able to eat an entire box of a dozen donuts and still look like a runway model. I just wish there was one innocence that she still had….I wish she still believed that her mom was healthy and just like all of her friend’s moms. Those moms take their kids shopping, to the movies and out to eat. My daughter doesn’t expect those things because she hasn’t known them in the last few years. She understands that I have to sleep all day on Saturday to recover from simply working a job that week and I can’t spend a beautiful Sunday afternoon playing outside with her, because my chemo injection has me draped over the toilet like a bad college flashback.

It got me thinking about that movie “My Life”…you know, the one with Michael Keaton where he’s terminally ill and makes a videotape for his unborn child? Yeah that one….don’t worry, I used an entire box of Kleenex and hugged everyone I knew with a death grip after watching it too. I wondered what my legacy would be to her….what words of wisdom would I want to impart her with if I wasn’t around to tell her later in life. As I sat at my computer at work the idea hit me. Everyone has diaries. Disney has the The Princess Diaries, Ozzy had Diary of a Madman…and hell, even the CW has the Vampire Diaries. Why can’t maternal Spoonies have the Mom Diaries? We moms have a lot to say and usually get the teenage trademarked eye roll when we try to share our vast expertise of life. So, here it is…the Mom Diaries…Letter to My Pre-Teen Daughter.

Dear Girl Child,

I know it’s not easy living with me….and it’s an exercise in sanity living with a pre-teen, but believe it or not, I have not always been a mom. Once upon a time, I was like you. I know you are probably shaking your head with your famous “but Moooooom, you don’t understand meeeeeeee.” Oh, but I do. You see, I wasn’t always the prehistoric Mom-a-saurus Rex. Believe it or not, I had the same problems you have and I too, thought my mother was the most out of touch, stupid woman on the planet. She used to tell me useless stuff like, “don’t wish so hard to grow-up….these are the best years of your life and you will want them back.” I looked at her like she had just told me the Theory Of Relativity in about seven different extinct languages. She didn’t know what she was talking about and I couldn’t wait to be 18 and move away. Well it is now, dear child that I share something with you…sit down, this may just shock you more than you will ever be shocked in your life. Guess what? She was right.

Life goes by too fast and sometimes it takes you on a side path that is unpaved and has no street signs. I thought I would always be zooming down the highway in a convertible sports car. Never in my wildest dreams did I think I’d be detoured off an exit that led to a world of confinement and illness in a broke down El Camino that just came off the cinder blocks. You think you are invincible and that nothing bad will ever happen. You don’t know how much I pray for that to be your destiny. But I thought it was my destiny too. That’s why, if you do nothing else, live life like it was your last day. I thought I had my entire life to do things on my bucket list…and now instead of a bucket list, I just have a bucket that I carry around on chemo day. I learned the hard way that life can change in the blink of an eye. Do all the things that you can just in case your life takes an unexpected turn and suddenly your dream isn’t so much to see the world as it is to see outside your bedroom.

I know that boy. I know him well. It doesn’t matter if it was 1990 or if it’s 2090…he never changes. He’s the boy that you watch from afar and dream about. If only he would ask you out…if only he knew you existed. Trust me, I kissed many frogs in my day while still pining away for the one that didn’t want me. (side note…never kiss frogs, you don’t know where they’ve been). Don’t waste spoons on the ones that don’t appreciate your greatness. There’s a reason that boy only dates the most popular girls and is more interested in looking at himself in the mirror than looking at someone for who they really are. Find someone who loves you unconditionally…not only for when you are the life of the party, but for when you are stuck at home missing the party because your body just can’t make it happen that day. Looking back on those days, I see the tears that I cried over that boy and know that he wasn’t worth them. Someone who truly loves you will love you on your good days as well as the days that you throw shoes at his head and delve into one of your five “flare day” personalities for his simple question of “what can I get you?” You are valuable and so is your time. Spend it with someone that’s worthy of it.

There is a time for hard work and there is a time for play. Don’t confuse them or value one over the other. I look back on those days that I stayed late at the office to impress my boss and those weekends that I wasted working a second job that truly didn’t make a dent in my debt, and think about all the spoons I wasted trying to climb the corporate ladder. Getting ahead isn’t as important as it seems. As you grow up,, don’t forget to simply live. I remember the day you were born like it was yesterday and I see you now as you grow into a young lady before my eyes. But I can’t seem to remember the days in between….the times I stayed at home in bed while you finally hit the ball and got to second base without striking out, because I didn’t have enough energy to get out of bed and clothes hurt too much to put on. I can’t seem to remember the skate nights you very wobbly learned to let go of the wall and make it to the end of the rink without falling. I can’t remember because I wasn’t there….I was at home with swollen knees and an inability to stop crying because my body felt like it was being crushed under a thousand bricks. Never decline to spend time with the people you love because “you can do it tomorrow”. What if tomorrow doesn’t come? What if your tomorrow is a gamble of how many spoons you have left in the drawer, and how many you can borrow from tomorrow? It’s called LIFE….live it out loud…unless your “out loud” includes blasting the Jonas Brothers, which in that case live life quietly with a set of headphones in your room.

Real friends love you when you are the one who makes them laugh…..and the one that makes them cry. I wasted too many tears on friends who wouldn’t know the meaning of the word if it walked up and smacked them in the face (which incidentally is something that is still on the aforementioned bucket list). Learn from my mistakes…you do NOT always have to be the “good time girl”. If you get down and your friends aren’t there for you, then they won’t be there for you when you need someone to drive you to the doctor because you can’t stay awake enough to operate a moving vehicle or your fingers are so swollen that you can’t hold the steering wheel. Let’s face it…women as a species are jealous people and while they may have the face of a beauty queen and an endless supply of subjects….those types will never hold a candle to your ability to pull a hail Mary spoon out of the depths of the beyond. Remember, quality over quantity. Those two best friends who love you enough to sit with you through an entire marathon of Lifetime movies when you are so sick that even blinking hurts are the ones that matter.

Finally the most important one of all… Don’t want to be like me…want to be better than me. You have every power imaginable within you to achieve greatness. I have watched you grow and I know that fire in your eye, I used to see it in the mirror. While mine has long since been extinguished, yours can only grow stronger. Do not settle for what is easy….go for what is impossible. You just may surprise yourself. When someone tells you that you can’t do something, prove them wrong. I have been told multiple times that I shouldn’t be working because it will run me down, I shouldn’t be exercising because it will swell my joints, I shouldn’t be outdoors enjoying the sunshine because it will destroy my already bruised, scarred and rashed skin….there is a lot that I shouldn’t be doing but I choose to live as much as I can. You have always said that I was your hero….that you wanted to be just like me when you grow up. I know you will understand when I say, I never want to hear those words come from you again. I want you to take what I have learned and be greater. If I could do it all over again there are so many things that I wouldn’t worry over and do differently. Having an illness changes your perspective and makes you realize what is important and what isn’t.

And for the record….whether you are “Team Edward” or “Team Jacob” isn’t one of life’s important choices. Trust me.

Love,
Mom

 

 

Written by guest writer Stephanie Kennedy

About Stephanie:
I live in Fayetteville, NC with my husband and 3 always hyperactive and occassionally adorable children. I was diagnosed with SLE in 2001 at the age of 27 and in the time since, have added Scleroderma, Hashimoto’s and Celiac’s disease to the original Lupus discovery. In my day-to-day life I am a Community Relations Specialist (aka, marketing and creative hodgepodge facilitator) with a local electric cooperative and part-time fitness instructor. For the past two years I have served on the Executive Steering Committee for the LFA’s Fayetteville Walk For Lupus Now event.
©2024butyoudontlooksick.com
  • All articles on this site are copyrighted and we ask for you not to alter or edit anything we publish in anyway. Also, please LINK to articles- not cut and paste.

  • Is ok that I copy and paste it and change the things that are pertinent to my daughter? This is the move moving letter I have ever read. Thank you. I needed it.

  • Browneyescc

    This was wonderful! thanks so much for sharing!

  • Terrie

    Thank you so much for writing this, I also have a 12 year old that is the mirror of me when I was young, and you helped me see that she is also suffuring thru this just the same that I am.

  • Claralou2602

    There is so much in there that I would love to say to my own 12 year old daughter. She has had to go through so much over thw years, with me always seeing one consultant after another, not knowing why I felt so awful. At one point they did think it was due to SLE, but the test came back negative – a huge relief for my family as we have already lost one dear member of the family to the disease. Much love and respect to you and your family. x

  • Amy

    Thanks, Stephanie. The core thoughts you put in there are valuable for anyone, & my husband & son found it beautiful as well. This is a beautiful piece, & I thank you for writing it.

  • Kimberly

    Thank you for taking the time to sahre with us. It is a very gernerous gift to be able to express what we all feel, an usually can not put into words. God Bless

  • Darlene

    Oh thank you for this! I had always longed for a daughter and at the age of 43, hubby and I adopted a set of fraternal twins so I finally had my daughter, albeit one who was 7! She had a horrible life before us and my inside vow was that all the good we would push in would eventually help her reconcile the crap and bad they endured at the beginning.

    Instead, I got sick. And in the years since, I have gotten sicker. She watched during 2008 when I went in and out of our local hospital (herein and after called the pokey) and her daddy wondered if I would come out. She has seen me get up all ready for church only to have my plug pulled and be unable to stay awake and actually attend. She has seen me stay up for two days at a stretch because my insomnia has me in its grips. Seen me have to struggle to walk, to drive, to cook because the pain wracks my body.

    I am so grateful for this site. It helps to know that others are in my boat praying that life won’t pass them by, knowing that with the spoons they have that day, something will have to go by the wayside….

  • linda

    With tears rolling down my face, I want to thank you for writing this Stephanie. I have a daughter that age too and feel your pain and frustration as well as the pride you have for her. I wish a day filled with spoons for you!!!

  • Kristen E

    I can’t read much of this on my screen because it’s one of those days you mention – the pain is so bad that my eyes can’t sort out the words. But what I read is beautiful and I’m grateful for you sharing such a personal letter with us!

  • Jeannie

    Beautifully said.

  • Pam

    You have an awesome way of reaching inside and pulling out the words and feelings that I think a lot of people experience but are not able to put to paper. Really amazing and touching!

  • Chelle

    A very important message beautifully written. Words to LIVE by for sure. Thank you for sharing such personal thoughts Steph.

  • Kerry

    Steph, I cannot even begin to describe how much this touched me, made me pause, and look at a situation with a brand new perspective. xoxo

  • Teri

    Stephanie,

    You are amazing and inspiring. My life is much greater for meeting and getting to know you. You rock!

  • Courtland

    Incredible…. You are able to reach down deep and share with the world what you and so many others struggle and deal with on a daily basis. Thank You!!!

  • Carolyn

    I am pretty much addicted to hearing what you have to say. You completely open my eyes to new faces of lupus with every post. Thank you!!

  • Karen

    PERFECT! You continue to be an incredible inspiration my dear friend. xxx

  • Carissa

    Steph, you have a gift. Writing is a gift and you have it.

    I believe that down the road, when Kaylin looks back and is able to read all of your articles she will very much appreciate the mom and woman you are. I think she’ll be totally proud and inspired by you. I am.

    Much love <3

  • Valerie Welch

    Wow. Great job..I hate to admit I may have to cut and paste some of your wisdom to bestow on my three daughters. You are- as always so good at expressing yourself, thank you for sharing, it is always well worth reading. I also appreciate the tears, never too early or late for a cry. Thanks again, and remember that you rock!

  • Claire Oliver

    Steph that is simply beautiful thanks for making me stop and think (oh and cry).
    we love you Hun and although we don’t live close enough to help we are here for you anytime
    thank you for being our friend xxxxxx

  • Yolanda

    Stephanie,

    What a beautiful article! Thank you for sharing and making me think. You have a great talent for writing…keep it up!

  • Erin Talley

    Stephanie, you have such an amazing gift! I look forward to Article #4. OH, and by the way, thanks a million for making me cry like a baby while at work – that was fun to explain!!

  • Ivy

    Amazingly touching and raw Steph……thank you so much for this. It made me cry and remember what my boys went through too…Beautiful writing……