Christine Miserandino’s writing and speaking engagements:

• Media: Television

  
  Keeping Kids Healthy : Lupus A Medical Mystery – Featuring Christine
  Miserandino
  Keeping Kids Healthy (PBS and American Public Television) Nationally
  Syndicated won a 2005 New York Emmy Award (11/2005) re-aired (2/2006,
  3/2006, 6/2006) EPISODE 401 – Lupus: A Medical Mystery
   

• Online

  1/ 24/08 -Christine has been interviewed for today’s CNN.com “empowered patient” column.

  Empowered Patient, a regular feature from CNN Medical News correspondent Elizabeth Cohen, helps put you in the driver’s seat when it comes to health care. This week’s topic asks the question, “Are you an obnoxious patient?”. Christine was quoted in tips # 3, 4 and 5! Ms. Cohen was easy to speak with and it was a pleasure to work with her. I hope to again in the future as patient advocacy and empowerment is something I feel so strongly about.

  Story Highlights Be an informed, confident patient, but also listen to your doctor’s view Don’t demand a prescription without an office visit Share, but don’t overload, your doctor with info you’ve gathered independently If you need more than 15 minutes, make special arrangements beforehand

  To read the whole story:
  http://www.cnn.com/2008/HEALTH/01/23/ep.obnoxious/index.html?iref=newssearch

  2/9/07 – Christine Interviewed for
  
  CNN.com Blog on Friday, February 09, 2007 for CNN.com "Paging Dr.
  Gupta" medical/health blog.  the article was called "Handling a
  friend’s diagnosis."  It has tips for what to do when visiting
  someone who is sick.  You can read the full article
  
  here.
   

• Print Media: Medical and Health Related Newsletters
  
  Emerge – Quarterly journal of CFS / ME Victoria Vol 26, No 1 Autumn 2007
  – "A Lesson in Adapting from my Dog"

  Emerge – Quarterly journal of CFS / ME Victoria Vol 26, No 4 Summer 2006

  New Jersey Chronic Fatigue Syndrome Association Spring / Summer 2006
  Newsletter

  Southern Colorado Pulmonary Hypertension Group – June 2006 Newsletter

  Bergen, NJ CFS Support Group Newsletter / April 2006 Vol. III, Issue #28

  Nationally Syndicated Column "DISABILITIES" (Week #183) "LUPUS OFTEN
  MISUNDERSTOOD" March / 2006

  Lupus Link Ontario, Volume 4 Issue 1 Winter / Spring 2006

  ButYouDontLookSick.com has been featured as a resource NorthCoast SLE &
  FMS Support Group Newsletter March 2006 – Feature story about
  ButYouDontLookSick.com E-Magazine

  NorthEast Fibro-Items Newsletter Volume 7 – Spring Issue featured
  article "Addition by Subtraction"

  Access Press, Volume 16, Number 11, November 10, 2005

  PEP Talk Newsletter September 2005

  PHA Volume 3 Issue 1 Spring / Summer 2005

  Hypoparathyroidism Newsletter June 2005

  RSDhope.org – February 2005

  Pulmonary Hypertension Association – February 2004

  Spondylitis.org – May 2004 News section – quoted "The Spoon Theory"
   

• Print Media: Newspapers and Magazines
  
  Herald Community Online (February, 2005 NY) ‘She
  never looked sick‘ – Personal interview and feature story

  The Valley Stream Herald (September, 2004 NY) ‘Take
  a walk for Lupus V.S. woman, family will celebrate 11th annual Lupus
  Alliance fund-raiser Oct. 17‘ – Personal interview and feature story
  about fundraising for Lupus Walk

  Long Island Woman Magazine (May, 2004 NY) ‘Living
  With Lupus, A Young Woman’s Journey‘

  The Valley Stream Herald (February, 2004 NY) ‘‘But
  you don’t look sick’ Valley Stream woman takes steps to increase the
  public’s awareness of Lupus‘
   

• Media: Speaking Engagements
  
  Christine Miserandino is a featured speaker for
  
  Invisible Chronic Illness Awareness Week September 10-16, 2007.

  The Lupus Alliance of America Long Island / Queens Affiliate June 2007
  "Kids and Teens" Panelist

  The Lupus Alliance of America Long Island / Queens Affiliate "Growing up
  with Lupus" Symposium June 2006

  GFWC Pocono Mountain Women’s Club – March 2005

  Phi Sigma Sigma, Hofstra University – Women’s Health and Wellness Fair
   

• Awards Won

  4/27/08 – Lupus Gala Brunch Honoree
  Lupus Alliance of America- Long Island/ Queens Affiliate

  8/2007 –
  
  ButYouDontLookSick.com website has won a Hope Award 2007. The Hope
  Award is given to websites that offer positive support and encouragement
  to people suffering from chronic illnesses, and is awarded by
  IBSTales.com, a site for irritable bowel syndrome sufferers.

  8/2007 – ButYouDontLookSick.com is a winner of one of
  
  HealthCentral’s 2007 Top Sites Awards

  7/2007 – ButYouDontLookSick.com has been listed as number 54 on
  EDrugSearch.com Healthcare 100 – The world’s top blogs on health and
  medicine.

  11/2006 – ButYouDontLookSick.com has been selected as the website of the
  week by LongIsland.com.

  11/8/2005 – KSDK News Channel 5 "Website
  of the Day"

  11/7/2005 – WKKG 101.5 Indiana Country Radio featured "Website of the
  Day"
   

• Blogosphere

  We at butyoudontlooksick.com are proud to be mentioned frequently in the health and medical blogosphere. We can not list all entries, but below are some noteworthy posts.

  1/22/08 Grand Rounds medical blog host

  1/4/08 Thanks to Amy Tenderich at Diabetesmine.com, who wrote an article called “Life, by the Spoonful” where she talks about living with Type 1 Diabetes and uses “The Spoon Theory” to talk about her life and the daily management of her disease.

  1/4/08 At Dlife.com, Amy also mentions us in her weekly column called “Straight up”. This week she talks about explaining the demands of living with a chronic illness in an article called “Counting Spoons“.