“Nice To Meet You…I’m the Sick Girl”

I feel as though I spend all of my time trying to get my spoonie-self heard. I wear my spoon pin to work- every day. I remind friends, family, co-workers about treatments and such. On the days when I call in sick to work or cancel a social function, I remind these people what I am dealing with. You

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Sick Humor: Diary of a Mad Spoon Woman

Sick Humor: Diary of a Mad Spoon Woman

I truly believe laughter is the best medicine…well as far as free medicines go.  I totally have a lunch sack full of pills that can give generic laughter a good ol’ fashioned run for its money, but nothing beats a laugh.  I’m not talking about the quiet snickers with your hand over your mout

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Sick Humor: The Top 10 Ways That You Know Two Spoonies Are Dating

Sick Humor: The Top 10 Ways That You Know Two Spoonies Are Dating

1.  They know each others' favorite hospital meal 2.  The smell of disinfectant becomes a turn on 3.  They exchange bodily fluids by dumping each other's urine containers 4.  Gripper socks become part of the lingerie wardrobe 5.  The only jealousy had is of IV-friendly veins 6. 

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Finding a

Finding a “Home” of My Own

The year 2010 was a big year for me, disease-wise. I was going about my lonely, diseased business. I had been sick since 1995, diagnosed in 2007 and getting treatments for 3 years. At the very end of 2009, I was forced to switch insurance companies. The new insurance company denied my treatments for

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Dare To Be Different: Breaking The Spoonie Rules

Dare To Be Different: Breaking The Spoonie Rules

Growing up, I was never one of those people who marched to the beat of their own drum.  I watched with envy the girls who had a fashion sense all their own and a fun quirky hairstyle that made them stand out in a crowd.  I wished frequently that I was the type of woman who said exactly what was on

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A New Year’s Day message from a 'Silent Spoonie'

A New Year’s Day message from a ‘Silent Spoonie’

I’m a butyoudontlooksick.com “regular.” By that I mean I read all the posts, follow on facebook and stay updated via Twitter.  However, I have never commented or responded to all the wonderful words or stories from the digital support group Christine has created.  That is, until now.  See,

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“Sick Humor” You know you’re a Spoonie when….. *Facebook Fan Page Edition*

 Thank you to the butyoudontlooksick.com facebook fan page community for helping come up with some of these great 1- liners! If you do not know what a "spoonie" is, please take a moment to read "The Spoon Theory". “You know you're a spoonie when going to PT and the grocery store in one day is to

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Autoimmune Fatigue….Tips To Cope When You’re Tired

Overwhelming fatigue….just the phrase itself sends sufferers of autoimmune disorders into a chorus of affirmative head nods.  Whether the fatigue stems from Lupus, MS, Rheumatoid Arthritis, Fibromyalgia or Chronic Fatigue Syndrome itself, the debilitating feeling of completely “running out of s

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Introducing the Official “The Spoon Theory/ I am a Spoonie” Video by Christine Miserandino

Introducing the Official “The Spoon Theory/ I am a Spoonie” Video by Christine Miserandino

A slide show movie of my life, how "the spoon theory" started, and how this HUGE internet community has been formed around the world to give support, encouragement and information by using butyoudontlooksick.com and #spoonie to connect. This has been an incredible ride! THANK YOU! PLEASE share th

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Election Day Thoughts – Be Your Own Advocate

With today being election day all over the country, it is important to remember that Spoonies must be our own advocates when it comes to getting help from our government in fighting our illnesses.  It is imperative that we take it upon ourselves to increase awareness about the need for funding for

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