Every person that you have faced in your life--whether good or bad--deserves a 'thank you'. Everyone that you encounter and has made an impact on you in your lifetime deserves this simple act of kindness. Instead of having your day consumed with timed pills, injections, doctor appointments and pain,
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If you follow me on Twitter you know that I’ve been dealing with issues at work: Lack of hours; going in to work and then being sent home before even clocking in. This has been going on for two weeks. I had a mental breakdown couple of nights ago because I have not accomplished anything in what I
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Brain fog. The words themselves sound almost creepy…like they belong in some poorly made horror film. Say them to any normal healthy person and you are likely to get looked at like you just recited the entire works of Shakespeare in Pig Latin. Say it to a fellow Spoonie and you will get a fa
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ATTENTION: BIG ANNOUNCEMENT I am feeling very grateful today. In a world when living with chronic illness can get you down, I am choosing to think positive and hopefully pass those positive vibes on to you! I am grateful for my life, my daughter, my family, my friends, and for ButYouDontLookSick
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I had the opportunity to speak with Tim Abbott of the radio show "Technical Difficulties". He is a great guy, so easy to speak to that the time just flew! Technical Difficulties is a weekly radio show about disability on Resonance 104.4 FM in London at 3.30pm on Fridays. Technical Difficulties is
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I spoke on June 16th at the #140conf in NYC with Amanda Greene, Brenda Blackmon, and Kelly Dawn. Our panel was called "the lupus ladies of twitter". We spoke about how social media has not only brought us together as a panel from across the country, but about how social media (twitter, facebook, ema
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Come celebrate my birthday in NYC! We are bringing together family, friends, "spoonies", and some new online friends to have a special night for a great cause! Wednesday July 20th from 6:30- 9pm at the RS Pop Shop -Roger Smith Hotel in NYC we have planned the perfect happy hour... a ton of fun w
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So, are you looking to let your Spoonie flag fly? Are you looking for a way to advertise your Spoonie-ness, or are you just looking for an elegant way to quietly remind yourself that you’re a Spoonie while still looking fabulous? Or better yet, are you a supporter of a Spoonie and you want to give
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We interrupt your regularly scheduled program to bring you this Spoonie Meltdown. Last week started like any other week. Well, that might be overstating it. I had been on vacation. I came back Monday to an already overfull work week and hundreds of emails to respond to from the days out. I also had
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You guys have been asking for this for a LONG time. This is me reading "The spoon theory" live at a Lupus Symposium. This video is from the speaking appearance at the Piedmont, NC LFA on September 11, 2010. Thank you to them for having me, and to Stealth Awareness for making the video. Please
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
