In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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We have all heard the dreaded saying "But you don't look sick?" But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, hair done, and full
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The old saying goes that "good things come in small packages." But when you are like me, and are best friends with the UPS delivery man; good things can come in all size packages. As someone who is chronically ill, living with lupus, fibromyalgia and a collage of other chronic illnesses; I have lear
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There is a amazing growing community of our readers who have been using twitter to connect by using the hashtag #spoonie at the end of every post. These people are all fans of butyoudontlooksick.com and are all somehow connected to "The spoon theory". I personally (Christine) use t
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A few years ago I got thrown from my horse. OK, who am I kidding? I am a Brooklyn girl at heart, no horses for me. But literally I felt like I had, if not been thrown from my horse, I was certainly thrown off my game. Life kept throwing me obstacles and I found it harder and harder to get around the
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Many years ago I heard a joke that was going around and it went like this. A guy was going home from the auto mechanic and just as he was passing a psychiatric center, a wheel fell off his car. He stopped, surveyed the situation and realized that the mechanic must have been distracted and never p
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What to do when you have done everything, and still feel like crap. There are days when I feel really crappy. Maybe I didn’t take my meds on time or I overdid the day before. What I really hate is when I seem to have done everything right and I still feel so wrong. The other day the weather was
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Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. Click HERE to download "The Spoon Theory" in PDF format. The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com My best friend and I were in t
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I am honored to say I was chosen to be featured in Johnson & Johnson Network's first Lupus video. They already have a huge catalog of informative, non branded videos on their health dedicated youtube channel... but now we can finally add Lupus to the list of health, disease and medical topics!
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
