If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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What to do when you have done everything, and still feel like crap. There are days when I feel really crappy. Maybe I didn’t take my meds on time or I overdid the day before. What I really hate is when I seem to have done everything right and I still feel so wrong. The other day the weather was
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I was born a dancer. Well, I guess I was born a little girl who liked to move then I became a dancer. As a baby, music soothed me and I loved to wiggle and move. My mother remembers me spinning and twirling around the house to any music that was playing on the radio. When I didn’t have music, I wo
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I remember going to the bright lights of Atlantic City and watching people play roulette. I would just walk around and watch people. I liked to watch the “high rollers” because they seemed so carefree with amounts of money that would make me sick, if I lost. For a moment, I would love to be able
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I am honored to say I was chosen to be featured in Johnson & Johnson Network's first Lupus video. They already have a huge catalog of informative, non branded videos on their health dedicated youtube channel... but now we can finally add Lupus to the list of health, disease and medical topics!
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Help wish Christine a Very Happy Birthday!!!! July 27th is my birthday so this year to start off my lupus fundrasing efforts, and to kick start our team efforts I am asking all my family, friends, "spoonies" and facebook family for just one gift. I do not need a cute outfit, a day at the spa or
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Every once in a while a book, a movie, or a TV show comes along that really touches your heart- your core. It makes a difference in your life and resonates with you, as something special. Recently, I read Brenda Blackman's book "A Mom's Story" and it was that same kind of experience. "A Mom's Story"
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Nick Cannon says he has a "lupus-like" condition according to many sources including people magazine. It does explain the recent health problems, but why cant stars ever come out and just say they have lupus. Why does it have to be "pre-lupus", kinda -like-lupus, or borderline lupus? Is that like be
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Cozy up, have a seat on the couch and chat with Christine and some friends! That is exactly what it will feel like when you take the time to watch these new videos from WebMD.com WebMD.com has launched a new community TV series called "Speaking of Lupus". The series is hosted by Christine Mi
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
