Reading “A Daughter’s Perspective” and wondering about my own daughter…

I just published an amazing article written by a guest writer Rebecca Geraghty. I must admit, that after doing my last read of the article, I am crying. I am 32 and my daughter will be 3 very soon. I wonder if my daughter will have the same thoughts of the author? I wonder what she will grow to know

[ 3 comments ] | [ read more ]

When Your Mother Has Lupus: A Daughter’s Perspective

When Your Mother Has Lupus: A Daughter’s Perspective

Being a daughter of a Lupus patient is a unique way to grow up.  I do not have the disease myself, but experienced many of its effects through my mother.  She was diagnosed when I was a year old, and lived with Lupus until last June when she passed away.  I was twenty-two years old when she died,

[ 68 comments ] | [ read more ]

The Lupus Taxpayer Gifts Bill needs your help!

Wonderful News! The Lupus Taxpayer Gifts Bill, which will allow Lupus to be one of the charity choices taxpayers can donate to on their NYS Tax return, passed unanimously in the NYS Senate late last week! Thank you to everyone who took the time to write letters and call their representatives to

[ no comments ] | [ read more ]

Lady Gaga Needs Better Lupus Information!

Lady Gaga graces the cover of the newest issue of Rolling Stone magazine, and inside she gives a candid interview full of her thoughts on topics like gays in the military, her much-anticipated new album and how she plans to battle lupus, a disease in which she tested "borderline positive." Insid

[ 14 comments ] | [ read more ]

Confessions of an Unapologetic High-Maintenance

Confessions of an Unapologetic High-Maintenance “Spoonie”

I am unapologetically, standing proudly on my perfectly pedicured toes proclaiming that I am high maintenance. Where exactly is it written that just because I have Lupus, I have to accept the life of a bag lady? Over and over I hear the same thing from doctors, friends, strangers, facebook friends,

[ 122 comments ] | [ read more ]

What is Lupus? Lupus Definition

What is Lupus? Lupus Definition

With Everyone Asking "What is Lupus?" Lately.... Here is a Simple Lupus Definition Lupus is a chronic inflammatory disease that can affect various parts of the body, especially the skin, joints, blood, and kidneys. The body's immune system normally makes proteins called antibodies to protect th

[ 5 comments ] | [ read more ]

Dear Lady Gaga: a Love Letter from a Lupus Patient

Dear Lady Gaga: a Love Letter from a Lupus Patient

Dear Lady Gaga, I just finished watching your interview with Larry King on CNN. If you knew me, you would know that running to the computer and vocalizing my thoughts to family, friends and even to you is nothing unusual! I have chosen to step up and “out” (so to speak) about my life with Lup

[ 28 comments ] | [ read more ]

Lupus Alliance responds to rumors of Lupus and Lady GaGa

ButYouDontLookSick.com works closely at times with the Lupus Alliance. We respect when organizations like The Alliance react quickly and respectfully. "May is lupus awareness month, and once again another celebrity has put lupus front and center in the news. Lady Gaga announced recently that she

[ no comments ] | [ read more ]

Christine Was Featured in This Week's

Christine Was Featured in This Week’s “The Cancer Warrior” Radio Show

I had the opportunity to speak with Mel Majoros who hosts the radio show "The Cancer Warrior" on Empower Radio. We discussed my Lupus story, as well as my latest treatment of Cytoxin which is a chemotherapy. We actually both had that medicine in common. We also had the "foggy brain" in common. W

[ one comment ] | [ read more ]

“Vanity” a poem by Shanelle Gabriel

I found this video on youtube last night. (Yes, I couldn't sleep again) But I feel that maybe I was meant to find this video and share it with all of you. The video shows a performance of live poetry by Shanelle Gabriel from Brooklyn, NY. Not only did I identify completely with her words and experie

[ 17 comments ] | [ read more ]