Hurry Up and Wait: Untold Stories of the ER

Hurry Up and Wait: Untold Stories of the ER

He had a half inch cut on his finger... it wasn’t even bleeding that bad and certainly didn’t warrant the barrage of “Grey’s Anatomy” style nurses snatching him up and herding him towards the coveted double doors.  I sat watching him like a hawk from the minute he walked in to the minute

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Giving Back Would Be the Best Christmas Gift of All

Giving Back Would Be the Best Christmas Gift of All

Last week, my husband Frank, our daughter Olivia, and I started getting out our holiday decorations. We were very excited to celebrate, because last year, lupus quite simply stole our holiday. We were determined that this year was going to be different. We decided to play Christmas music, dance and

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Historic and Hopeful Day for Patients living with Lupus - FDA Advisory Committee’s Recommendation to Approve Benlysta for Lupus

Historic and Hopeful Day for Patients living with Lupus – FDA Advisory Committee’s Recommendation to Approve Benlysta for Lupus

The U.S. FDA Arthritis Advisory Committee voted 13 to 2 to recommend approvalof the treatment developed by Human Genome Sciences (HGS) and GlaxoSmithKline Tuesday, November 16, 2010 The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations are pleased wit

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Autoimmune Fatigue….Tips To Cope When You’re Tired

Overwhelming fatigue….just the phrase itself sends sufferers of autoimmune disorders into a chorus of affirmative head nods.  Whether the fatigue stems from Lupus, MS, Rheumatoid Arthritis, Fibromyalgia or Chronic Fatigue Syndrome itself, the debilitating feeling of completely “running out of s

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Twentysomethings and Lupus - A New Generation of Friendship and Fundraising

Twentysomethings and Lupus – A New Generation of Friendship and Fundraising

Back in June I received a facebook message that changed my life.  My friend from high school, Jessica Glazer, sent me the following: “I have an idea I want to talk to you about.  I was thinking of having a party to raise money to contribute to your Lupus fundraising efforts.  It could be a pla

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Founder of ButYouDontLookSick.com to Speak at Atlanta, Georgia Lupus Symposium

Founder of ButYouDontLookSick.com to Speak at Atlanta, Georgia Lupus Symposium

Christine Miserandino, founder and owner of the online magazine and support system, butyoudontlooksick.com will be the keynote speaker at the Lupus Foundation of America, Georgia Chapter’s Annual Lupus Symposium.  Christine, who has been living with Lupus for over 15 years is a nationally recogni

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Yes, I Still Have Lupus.

Yes, I Still Have Lupus.

Sunday October 17th is the annual Lupus Walk fundraiser for the Lupus Alliance in my local area. I am a person living with Lupus. My family and I pride ourselves on being one of the top fundraising teams every year. We make phone calls or send email messages to family, friends and co-workers. We eve

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We're All In This Together.... My Experience Meeting Christine and Other Spoonies at the LFA NC Lupus Summit

We’re All In This Together…. My Experience Meeting Christine and Other Spoonies at the LFA NC Lupus Summit

I’ll admit it…..I almost backed out at the last minute.  I had been planning on attending the LFA NC Lupus Summit for some time now and had visions in my head of overwhelming knowledge and epiphanies coming my way.  I dreamed of finally being in a room filled with people who didn’t ask me ho

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FDA Priority Review Designation for BENLYSTA® First Drug for Lupus in 50 years

FDA Priority Review Designation for BENLYSTA® First Drug for Lupus in 50 years

ROCKVILLE, Md.--(EON: Enhanced Online News)--Human Genome Sciences, Inc. (Nasdaq:HGSI) and GlaxoSmithKline PLC (GSK) today announced that the U.S. Food and Drug Administration (FDA) has granted a priority review designation to BENLYSTA® (belimumab) as a potential treatment for systemic lupus er

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Christine Miserandino from ButYouDontLookSick.com will be the keynote speaker in NC

Christine Miserandino from ButYouDontLookSick.com will be the keynote speaker in NC

Christine Miserandino from ButYouDontLookSick.com will be the keynote speaker for the Piedmont, NC chapter of the Lupus Foundation. This is the 10th annual Lupus Summit on September 11th.  The deadline to order tickets is September 1st-- so act now!  Link to order your tickets is below. She wi

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