Keeping Passover Tradition While Managing Lupus

Keeping Passover Tradition While Managing Lupus

As a Lupus patient, the Jewish holiday of Passover (which this year starts on the night of April 18) is one that resonates with me. It is the holiday that retells the biblical story of Exodus where the Jewish slaves overthrew the Egyptian pharaoh. Moses led the Jews on a journey through the desert t

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My Social Media Selves

My Social Media Selves

It was the best of times, it was the worst of times. Well, it was probably more of the worst part. In fact, the best of times hardly seems like a qualified way to describe my day to day existence. Ok, and if you want to get technical, I totally just ripped that off from a classic novel, but the famo

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New Video: Christine Miserandino reads 'The Spoon Theory'

New Video: Christine Miserandino reads ‘The Spoon Theory’

You guys have been asking for this for a LONG time. This is me reading "The spoon theory" live at a Lupus Symposium. This video is from the speaking appearance at the Piedmont, NC LFA on September 11, 2010. Thank you to them for having me, and to Stealth Awareness for making the video. Please

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The Luck of the Spoonies

The Luck of the Spoonies

Today was a lupus day. You know the ones that hit you like a ton of bricks the moment you wake up? You realize that your busy-for-a-spoonie-but-not-for-a-normal-person day yesterday has left you in a serious deficit today. Yeah…today was that day. And then I had to play “Mom” to my two youn

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Proud To Be A Lupus Advocate From Home

Proud To Be A Lupus Advocate From Home

I have Lupus. I am passionate advocate for Lupus Research and Education. I have been to Washington, DC twice as an advocate for “Capitol Hill Advocacy Day” but this year I will not be able to attend in person. It is expensive to travel to the East Coast and this year I was unable to make the tri

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Benlysta Was Approved And Hope Was Born - A Lupus Patient's Perspective

Benlysta Was Approved And Hope Was Born – A Lupus Patient’s Perspective

March 9, 2011 – I will remember this day, Benlysta was approved and hope was born. I will never forget the day I was diagnosed with Lupus. That was 18 years ago, and I am now 33. For those of you doing the math, that means I have had Lupus over half my life. Right now Lupus is incurable, so I exp

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Historic Day for Lupus Patients - Benlysta gets FDA approval

Historic Day for Lupus Patients – Benlysta gets FDA approval

  FDA approves Benlysta to treat lupus First new lupus drug approved in 56 years The U.S. Food and Drug Administration today approved Benlysta (belimumab) to treat patients with active, autoantibody-positive lupus (systemic lupus erythematosus) who are receiving standard therapy, includi

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Spoonie Scalp Help: Nioxin Scalp Recovery Soothing Serum

Spoonie Scalp Help: Nioxin Scalp Recovery Soothing Serum

As a patient living with lupus, I must say that the various flavors of symptoms is often the hardest to cope with. Every month I experience something completely new that leaves my doctors gaping in disbelief as to whether  I'm making it all up.  As if! The latest offender has been my scalp. Whene

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March 1 – Today is Lupus Foundation of America’s 2011 Advocacy Day

Today is Lupus Foundation of America's 2011 Advocacy Day. Join me to urge Members of Congress to support increased funding for lupus research and education programs. Visit http://capwiz.com/lfa to make your voice heard. Don't be afraid, just write what is in your heart. Write what you would want to

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Are you in South East Florida? Come see Christine speak at the “Chronically Sweet Affair” This Saturday!

If you are in South Florida, you are invited to this FREE event! Come see Christine speak at "The Chronically Sweet Affair" this Saturday February 12 from 1:30-3pm The Lupus Foundation of America’s Southeast Florida Chapter is hosting its 1st Annual Valentine’s event, A Chronically Sweet A

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