In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
[ 45 comments ] | [ read more ]
We have all heard the dreaded saying "But you don't look sick?" But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, hair done, and full
[ 38 comments ] | [ read more ]
Many prominent bloggers were asked to participate in this simple blog post meme to help spread awareness during Invisible Awareness Week (September 11-18th) I think it is important to participate in these things because as much as this website, my speaking and writing have brought me into the public
[ 197 comments ] | [ read more ]
There are several chronic ailments that affect cognitive function. Also, certain medications can cause forgetfulness or confusion. The non-medical term for this is brain fog, and it seems pretty apt. I like to compare it to trying to run while knee-deep in mud. I've been dealing with varying amou
[ 31 comments ] | [ read more ]
To be separated Body and mind Split between thoughts of love And questions for the enemy Yet they both reside In the same body In my body There are no answers Just community A family of people like myself Found here Yet spread all around the world Provide strength
[ 7 comments ] | [ read more ]
“You ever had one of those wars where everything goes wrong?” Hawkeye, M*A*S*H From the earliest history classes, we’re taught how it’s very hard to win a war fought on two fronts. You can easily be overtaken. If you start to ignore one front to concentrate on the other, you’re going to
[ 12 comments ] | [ read more ]
As someone who has been chronically ill for 12 years, I could talk in excess about the number of things I have purchased to ease both body and mind. I am almost entirely housebound, and as a result, I work diligently to make my home as disability-friendly as possible. If I had to pick ten thing
[ 30 comments ] | [ read more ]
Overwhelming fatigue….just the phrase itself sends sufferers of autoimmune disorders into a chorus of affirmative head nods. Whether the fatigue stems from Lupus, MS, Rheumatoid Arthritis, Fibromyalgia or Chronic Fatigue Syndrome itself, the debilitating feeling of completely “running out of s
[ 55 comments ] | [ read more ]
A poem submitted by one of our writers and she also has been reading our site for some time now. She lives with Fibromyalgia. Fibro, A poem. Could you imagine being 20 years old, 30 years old, And being stuck in the body of a 90 year old? Watching your skin turn to hell and flake, away
[ 37 comments ] | [ read more ]
Living with a chronic illness can be like walking a tightrope. I live with Fibromyalgia, Irritable Bowel Syndrome and a depressive disorder. In order to best manage my Fibromyalgia, it’s vital that I carefully pace myself. Too much leads to burn out, but too little activity can also worsen my s
[ 16 comments ] | [ read more ]
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
